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Japan – Ami

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Ami (Japan)

Patient Advocate

Hello, my name is Ami from Japan. I currently work for a world leading Executive Training company as a trainer where we help people to increase their confidence, communication, human relationships, leadership and stress management skills.

I was born with CMTC and from a small age this effected my confidence, since due to the rarity of the disease and the position of its appearance on my body, people would often stare and make comments. When I joined the CMTC Global family day in Holland many years ago, it was my first time to see other people who also have CMTC, this made me begin to feel safe to open up about myself and gain more confidence.

I am passionate about helping support other people that may be facing the same issues I have gone through, so please feel free to contact me!



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