Canada – Katie Allen

 In Patient Advocates ENG

Katie Allen (Canada)

Patient Advocate
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My name is Katie Allen and I was diagnosed with CMTC when I was around 5 months old. I have marks covering the right side of my body and the left side of my neck, face, and head. Additionally, I have experience with limb length discrepancy, and other impacts such as difficulties maintaining body temperature and fine motor issues in my affected hand. I have spent the last 15 years receiving laser treatments to remove the marks nearest my eyes.

I have B.Sc. in Environmental Science and through my last ten years of post-secondary education, I have had amazing opportunities, in class and in medical appointments, to expand my knowledge of medical science and work with doctors to manage and better understand my CMTC.

Please contact me if you have any questions, I am happy to chat or discuss my own experience with CMTC!


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