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For people with CMTC and Other Vascular Malformations

CMTC-OVM is a worldwide non-profit community that aims to improve the quality of life of people suffering from rare vascular abnormalities (blood vessel abnormalities), such as CMTC and Klippel-Trenaunay, their families, and stimulate scientific research into these disorders.

LATEST NEWS AND ACTIVITIES
ICORD

30-05-2026

CORD Rare Diseases conference 2026

30-05-2026

Blog Katie Allen May 2026

27-05-2026

Family Day 2026: registration open

23-05-2026

Approval alpelisib by EMA

UPCOMING EVENTS

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PROF. DR. JAN PETER BALKENENDE

Former Prime Minister, External Senior Advisor to EY, Professor Erasmus University, Ass. Partner Hague Corporate Affairs.

DR. YANN LE CAM

CEO Eurordis

personal stories

“As if she already understands that it is part of her.”

SANNE

“I have never seen myself as different from other children”

EDEN QUINE-TAYLOR

“Enjoy what she can do and try not to worry”

MARCIA BRANDS

Your support is powerful
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REGISTER AS MEMBER

Membership of our organization offers a lot! Think for example of full access to our website, our international Family Days and Conferences in the Netherlands! Contact with other patients, families and health care providers is crucial!

CONTRIBUTE WITH A DONATION

Do you want to make a concrete contribution to improving the quality of life for people with a rare disease?

SPONSOR OUR ACTIVITIES

Becoming a sponsor of our organization also increases the (global) visibility of your company and shows your social face. Becoming a sponsor is a concrete interpretation of Corporate Social Responsibility / Involvement. We have sponsors from different companies who make an important contribution in various ways.

BECOME VOLUNTEER

Voluntary work in our organization contributes to your personal development. We often offer challenging work in an international and dynamic environment. As a volunteer, you can get a good expense allowance. We have drawn up volunteer profiles for practically all roles.

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our community

Membership in our organization offers a lot! Think for example of full access to our website, our international Family Days and Conferences in the Netherlands! Contact with fellow sufferers is crucial! Membership in our organization can be reimbursed by your health insurer.