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Living with

Living with a Vascular Malformation – Your Story Matters

Do you live with a vascular malformation? You’re not alone — there are others like you, and CMTC-OVM supports you with recognition, information, and a community that truly understands what you’re going through.

You and Your Condition

A vascular malformation is often visible, but sometimes hidden. It can affect your appearance and your self-image — think of skin marks, asymmetry, or features that make you look different.
It’s completely normal to have questions about your identity and how to deal with insecurities.

At Home: Space and Recognition

Never underestimate how important support from your surroundings is. Your self-image may be under pressure, especially when you’re dealing with fatigue, treatments, or uncertainty.

School & Work: Belonging

At school or work, you simply want to be — without extra attention.
CMTC-OVM offers tools such as various informational materials to foster understanding and inclusion — including tips on bullying, psychological effects, and communication.
Through their Pedia, you can find information on psychological impact, self-confidence, patient rights, and ways to share your story.

(Intimate) Relationships: Honest & Confident

Questions like “What do I tell someone I’m dating?” or “Do I feel different?” are completely normal. CMTC-OVM discusses these topics through blogs and videos — accessible, free of medical jargon, and easy to relate to.

Travel & New Environments

Do you want to study, work, or travel with your condition? It helps to know your rights, how to arrange accessibility, and what preparations you can make. CMTC-OVM develops content that addresses these kinds of questions.

Explaining Your Condition to Others

How do you explain what a vascular malformation is without it feeling uncomfortable?
CMTC-OVM provides information brochures in multiple languages, videos, and a knowledge base (Pedia) that is clear, reliable, and up to date.
You also get access to a community where you can share your story — through blogs, private forums, or events.

Your Life, Your Choices — with CMTC-OVM

  • Find recognition and understanding from others who truly know what it’s like.
  • Help others understand with brochures, leaflets, and clear language.
  • Boost your self-confidence — in relationships, at work, or while traveling.
  • Use reliable information about medical, legal, and social aspects.
  • Contribute to projects and share your experiences through blogs, videos, or events.
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