Alexandra Haan – Treasurer
My name is Alexandra Haan and I am a single mother of two. My eldest has a venous-lymphatic malformation around his left eye, temple, nose, forehead, and in the skull, and my youngest has a developmental language disorder. We live in Dordrecht and have travelled a lot (to New York, Berlin, Boston) due to my […]
Tari de Jong – Secretary
My name is Tari de Jong. I was born with a port-wine stain, also known as a capillary malformation, on my right arm. Since around 2017/2018, this condition has led to some sports-related issues, which eventually brought me to become a member of CMTC-OVM. It’s incredibly valuable that such an organization exists for children nowadays […]
Erik Kloosterman – Penningmeester
My name is Erik Kloosterman. I first came into contact with the CMTC community through the website. Our oldest son was born with several marks on his body, but in the maternity ward no one could tell us exactly what they were. The website, however, provided extensive information and personal stories, which immediately made us […]
Laurens Rorive – Communication
My name is Laurens Rorive and I am Otis’ father. Otis was born in 2019 with marks covering his body, and so began our medical search. Fortunately, four days after his birth, we ended up at the Sofia Children’s Hospital for the WEVAR (WErkgroep VAatafwijkingen Rotterdam – Vascular Malformations Working Group Rotterdam) consultation hour. Due […]
Lex van der Heijden – President
Lex is the father of a young lady with CMTC (she’s the reason for this organization), founder (1997) and chairman of the global organization. In the past he was ICT Project Manager and has worked for example for IBM Global Services. In 2012 he switched to devote his time and energy full-time (unpaid) to his […]