Other

  • Can an infusion be applied or an injection be given in for example an arm or a leg that is affected by CMTC?
    This is not recommended due to the chance of thrombosis (clotting in the bloodstream which could cause a stroke or heart attack for example).

    We have a child with CMTC and would like another child. How great is the chance that we will have another child with CMTC?
    The chance of having a second child with CMTC is low. The same chance as for parents that have had children already without CMTC.

    My child with CMTC has regular nosebleeds. Does this have anything to do with CMTC?
    As far as is known, there is no relationship between CMTC and nosebleeds.

    My child has a CMTC patch on her knee. If she falls on this patch and the wound bleeds then it appears to take a long time before the knee recovers. Is this normal?
    This is normal.

    My child with CMTC has marked red veins in her eye. Does this have any connection with CMTC? What is my best course of action?
    Probably also a symptom or has nothing to do with it.

    Should someone with CMTC patches be exposed to the sun?
    This is generally not an issue if a good sun cream is used of at least factor 15.

    My child with CMTC has very flexible joints. Does this have anything to do with CMTC? 
    There is no known connection between CMTC and flexible joints (hyper mobility). Normally speaking, this hypermobility will reduce around 5 years after the end of the body’s growth stage.

    My child with CMTC has two toes that have grown together. Does this have anything to do with CMTC?
    This can occur when the child has CMTC patches on the legs and/or feet. We have several members who have two toes that have grown together.

    As a woman with CMTC, should I use an anti-conception pill?
    If you have varicose veins then there is a risk of thrombosis. Discuss this with your doctor.

    I have CMTC and would like to become pregnant. What should I do?
    There are no restrictions in the case of non-syndromal CMTC. 

    I have CMTC and an asymmetric body in the height dimension. I also have scoliosis. Are these two conditions related?
    This is possible but would mostly not be the case.

    My child with CMTC has fingers that are growing bent. Does this have anything to do with CMTC?
    No.