Family Day 2 July 2022: de Efteling
Finally we can organize our International Family Day again! On Saturday 2 July we are going to the Efteling! There is something for all ages to experience from Fairytale Forest to all kinds of roller coasters. More information and registration
VASCA Workgroup Conference spring 2022 – Brussels
On the 6th of April 2022, the annual Spring Meeting of the VASCA work group (a division of ERN VASCERN) was organised in Brussels. VASCERN is one of the European Reference Networks (ERNs) in the field of rare multisystemic vascular diseases. We as an organisation are affiliated with the ERNs VASCERN and SKIN. All care […]
Launch Global Dermatology Coalition
On May 25th 2022 a patient-led multi-stakeholder group of like-minded organizations – including dermatology patient organizations, health care professionals (dermatologists and dermatology nurses), researchers, and industry – announced the formation of the Global Dermatology Coalition. This announcement comes during the 75th World Health Assembly in Geneva, as a first step in changing perceptions about the […]
08. Parents Support Guide
A series of practical booklets for parents during the different phases of their child’s life Parents Support Guide in multiple languages