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Argentina – Josefina Obiglio

My name is Josefina Obiglio, I live in Argentina and have been working in Human Resources since 2005. I am married to Ignacio and together we have 3 children. Our oldest was born with the Klippel-Trenaunay vascular malformation. From the beginning, our goal was to create an interdisciplinary team that would guide and support us. […]

Blog Katie Allen July 2024

The transition from pediatric to adult care – Transfer of medical records One major challenge in Canada with a rare disease is the transition from pediatric to adult care. My transition was, unfortunately, not a resounding success, and I would love for my failures to be learning opportunities for others, rather than just the stumbling […]

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