Prof. Dr. Eulalia Baselga (Spain) – Medical advisor
Eulalia Baselga is currently the Head of Dermatology at Hospital Sant Joan de Déu, Children’s Hospital, and an Associate Professor at the University of Barcelona. The Department of Dermatology is a member of the ERN-VASCA and ERN-Skin European networks. Her main area of research focuses on vascular anomalies, and she is currently the principal investigator […]
WCRSD 2024 – Paris
For the second time, the World Congress on Rare Skin Diseases was organized in Paris from June 12 to 14. The number of attendees was around 400. This congress brings together doctors and patient representatives from around the world for rare skin diseases. There was a large representation of patient advocates from various countries in […]
Blog Katie Allen September 2024
The last topic I wanted to cover in this little series about the transition from pediatrics to adult care was the hardest part for me, the loss of the team approach to my condition. In the BC Children’s Hospital, where I had my pediatric care, I had an incredible vascular malformation team, which consisted of […]
EADV 2024 – Amsterdam
This year, the global EADV (European Academy of Dermatology & Venereology) conference was held in Amsterdam from October 25 to 28, 2024. The congress consisted of 180 sessions, more than 650 speakers, and over 17,000 participants from around the world. The CMTC-OVM delegation consisted of two people: Laurens Rorive and Lex van der Heijden. We […]
Added value patient organisations for medical professionals
As one of the many Patient Organizations, we visit all kinds of conferences with the main goal of making the patient’s voice heard and contributing to improving the quality of life of the patient and his/her family. Because what is it really about? The patient! And what is a doctor doing? The patient too! It […]
