As one of the many Patient Organizations, we visit all kinds of conferences with the main goal of making the patient’s voice heard and contributing to improving the quality of life of the patient and his/her family. Because what is it really about? The patient!
And what is a doctor doing? The patient too!
It is therefore crucial that doctors and Patient Organizations work together to improve the quality of life of the patient, where we as a Patient Organization also directly involve the family.
At conferences such as PEDRA and ISSVA, the position of Patient Organizations is very clear! Here we are directly involved in the conference, our stands have a very good and visible location and we are taken seriously. We also work together with these organizations outside of the conferences.
Unfortunately, this is not yet the case everywhere. It often turns out that doctors do not (yet) see the value of Patient Organizations, the concept of ‘shared decision-making’ has not yet penetrated to them.
That is why we take our responsibility and describe the added value of Patient Organizations for doctors.
