Blog Katie Allen February 2025
Happy Rare Disease Month. In honour of Rare Disease Day at the end of this month, I wanted to address something that can be super challenging at times while juggling your rare disease, getting involved in a community – any community. Many people with complex conditions can relate to the fact that sometimes between your […]
Blog Katie Allen January 2025
One of the scariest things that my condition has caused is medication uncertainty. I am currently going through this with a new medication, so I figured I would take this blog as an opportunity to discuss this experience. I am currently suffering from migraines, and we are unsure if they are CMTC-related or not, but […]
Blog Katie Allen December 2024
[vc_section full_width=”stretch_row” css=”.vc_custom_1585128400841{background-color: #576283 !important;}”][vc_row][vc_column][vc_empty_space][/vc_column][/vc_row][vc_row][vc_column width=”1/3″][/vc_column][vc_column width=”2/3″][vc_empty_space][mk_fancy_title strip_tags=”true” tag_name=”h1″ color=”#ffffff” size=”60″ line_height=”90″ font_weight=”bolder” margin_bottom=”0″ font_family=”none”]Blog Katie Allen December 2024[/mk_fancy_title][mk_divider style=”thick_solid” divider_width=”custom_width” custom_width=”70″ align=”left” border_color=”#a1aabe” visibility=”hidden-sm”][mk_fancy_title strip_tags=”true” tag_name=”h5″ color=”#ffffff” size=”16″ font_weight=”400″ margin_bottom=”0″ font_family=”none”]Personal experiences – Katie Allen (Canada)[/mk_fancy_title][/vc_column][/vc_row][vc_row][vc_column][vc_empty_space height=”64px”][/vc_column][/vc_row][/vc_section][vc_section full_width=”stretch_row” css=”.vc_custom_1585137324203{background-color: #ffffff !important;}”][vc_row][vc_column][vc_empty_space][/vc_column][/vc_row][vc_row][vc_column width=”1/3″][vc_wp_custommenu title=”Blogs” nav_menu=”274″ el_class=”leftsubmenu”][/vc_column][vc_column width=”2/3″][mk_image src=”https://www.cmtc.nl/wp-content/uploads/2024/12/katie-dec2024-web.jpg” image_size=”full”][vc_column_text disable_pattern=”false” margin_bottom=”10″ css=”.vc_custom_1735123331913{margin-bottom: 0px !important;}”]Happy December […]
Blog Katie Allen November 2024
In a continuation of our blogs on working with a rare disease, this month we are discussing some of the challenges presented by more office-typical workplaces. As always these blogs are written from my perspective and experiences, so everyone will have different challenges, both from their own body experiences and based on co-workers, as they […]
Blog Katie Allen October 2024
Working with any rare disease presents many challenges, with a visible condition, like my vascular malformation, different workplaces have different hurdles to overcome. I have been lucky enough to have experience working in both public-facing jobs and in more office-typical placements. For brevity, I will discuss challenges in public-facing jobs in this blog and address […]
Blog Katie Allen September 2024
The last topic I wanted to cover in this little series about the transition from pediatrics to adult care was the hardest part for me, the loss of the team approach to my condition. In the BC Children’s Hospital, where I had my pediatric care, I had an incredible vascular malformation team, which consisted of […]
Blog Katie Allen August 2024
One of the most obvious changes when moving from pediatrics to adult care is the changes in the hospital experience. This is a topic that in British Columbia, Canada is something that medical professionals are trying to address but seem to be having a hard time addressing the transition from a truly patient perspective. It […]
Blog Katie Allen July 2024
The transition from pediatric to adult care – Transfer of medical records One major challenge in Canada with a rare disease is the transition from pediatric to adult care. My transition was, unfortunately, not a resounding success, and I would love for my failures to be learning opportunities for others, rather than just the stumbling […]
Blog Katie Allen June 2024
It has honestly been a rough month here, and I figured writing about it may help so please bear with me, as it is likely to be very stream-of-consciousness. About four-and-a-half years ago my father passed away after a brutal fight with cancer, at the time Mom and I put everything on hold to care […]
Blog Katie Allen May 2024
I recently had an amazing appointment with a new specialist and while it can seem like a little thing, I have learned that the information my GP provides a new specialist, for a treatment, or while getting images done can make or break the visits and results. One example of this going very poorly was […]
