CORD members meeting 2023
Our Patient Advocate Katie Allen attended the CORD membership meeting on behalf of our organization. After a quick fix on some name issues, we were off and running accepting the 2022 minutes. Then we moved on to the financial statements which are looking good. Finances are up from an increase in activity after COVID-19 but […]
CORD 2023 – rare disease day 2023
Overall, the tone of this meeting was very positive. One of the major discussions of last November’s meeting was about when the Canadian Federal Government was going to announce the Rare Disease Strategy they had been promising since 2019. A week before this conference the beginning stages of a Rare Disease Drug Strategy was announced […]
CORD 2022 – Toronto
The Canadian Organization for Rare Diseases (CORD) hosted the Rare Disease 2022 Fall Conference in Toronto on November 21-22, 2022. Katie Allen (online) and Anna Janzen (physical) participated in this conference on behalf of our organization. Below are a number of short reports from various speakers. Summary Overall, it was an informative and goal-oriented conference. […]
CORD 2019 – Toronto
The Canadian Organisation for Rare Diseases (CORD) organised a conference in Toronto from the 10th through the 12th of May, 2019. Lex participated in this conference on behalf of our organisation. Approximately 140 people were present from countries from all over the world. In addition, again meeting with the old acquaintances, new contacts were made, […]
