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Pedia
Conditions

AV malformation

Capillary malformation

CMTC

Complex mixed malformation

CLOVES

Congenital hemangioma (NICH/RICH)

Diffuse Capillary Malformation with Overgrowth (DCMO)

Granuloma telangiectaticum

Hemangio-endothelioom

Klippel-Trenaunay

Lymphatic malformation

Stork bite

PROS (PIK3CA-Related Overgrowth Spectrum)

Sturge-Weber

Teleangiectasias

Tufted angioma

Venous malformation

Diagnosis

Multidisciplinary consultation

Clinical features of vascular malformations and associated gene mutations

The genetic cause of vascular malformations: an update

Genes and vascular malformations

Genetics and vascular malformations

Reverse phenotyping in patients with capillary blood vessel abnormalities

One swallow doesn’t make spring (summer) yet

Searching for the genetic cause of vascular anomalies (such as CMTC)

CMTC and genetic mutations

Genetics glossary

Multidisciplinary consultation

Clinical features of vascular malformations and associated gene mutations

The genetic cause of vascular malformations: an update

Genes and vascular malformations

Genetics and vascular malformations

Reverse phenotyping in patients with capillary blood vessel abnormalities

One swallow doesn’t make spring (summer) yet

Searching for the genetic cause of vascular anomalies (such as CMTC)

CMTC and genetic mutations

Genetics glossary

Treatment

Medication

New developments laser

Laser in dermatology: past, present and future

New Device Clears Veins in Cases of Serious Thrombosis

Laser treatment OVM

Treatment of Vascular Malformations with Interventional Radiology

Treatment 10%

Living with

The importance of patient-specific resources for families dealing with prenatal rare diseases

Dermatology from a broader view: mind-body connection

Skin diseases and psychological aspects

Living with a birthmark

Anxiety and pain management in children

On the breach for a child-oriented approach

Medical supervision

Bullying

Learning to cope with your condition/vascular anomaly

Possible consequences

Acceptance

The beginning of the end of the relationship

Brother or sister ill

Live like an animal

Burden of disease

Meet Chloe

The importance of patient-specific resources for families dealing with prenatal rare diseases

Dermatology from a broader view: mind-body connection

Skin diseases and psychological aspects

Living with a birthmark

Anxiety and pain management in children

On the breach for a child-oriented approach

Medical supervision

Bullying

Learning to cope with your condition/vascular anomaly

Possible consequences

Acceptance

The beginning of the end of the relationship

Brother or sister ill

Live like an animal

Burden of disease

Meet Chloe

Skin

Tattoo complications

Skin aging

Melanomas & moles

Skin therapy

UV radiation

Other

Role of patient organisations in healthcare

European Patient Advocay Groups (ePAG’s)

European Reference Networks (ERN’s)

ISSVA classification

Decide together

Stem van de patiënt

New developments laser

Patient’s rights

Holistic person-centred care

State of the art activities rare diseases Europe

Foreign health care in Europe
Members
Registration

Membership Registration

Become a donor

One time donation

Medical Advice

Personal medical advice

Diagnosis and treatment in the Netherlands

Medical diagnosis facts

Events

Member conferences

Family Days

Family weekends

Experience stories

Interviews

Blogs

Personal stories

Ronald McDonald

Unwind and reconnect with your loved ones in Ronald McDonald vacation homes

Family messages

Family messages
Activities
Information material

Information folders

Request brochures/booklets

Newsletters

Social media channels

FAQ’s

Videos

Links websites

Added value organizations

Added Value of Patient Organizations for Patients

Added Value of Patient Organizations for Families

Added value patient organisations for medical professionals

Patient advocacy

Encouragement program

Experiences patient advocates

Way of Working

Report PA training 2023

Become patient advocate?

Training patient advocate

Report PA training 2022

External Conferences

Conference participation

CORD

Eurordis

Genetic Alliance

Global Skin Foundation

ICORD

ISSVA

NORD

VBF

Rare diseases day (Netherlands)

Other conferences

EADV

EADV

ISSVA

Projects

Projects

Webinars

Webinar reports

Overview & registration webinars
About CMTC-OVM
Organization

Board

contact

Policy plan

Advisors

Ambassadors/supporters

Advisory council

sponsors

Volunteer

Financial committee

Influence & participation

Complaints

Financial

Annual reports

Budgets

Privacy

Your rights

Statement

Access control

Data registration

Your privacy, our concern

Secure e-mail

Privacy & security tips

Our infrastructure

Documentation

Certifications

Anniversary booklet 25 years CMTC-OVM

Code of conduct

Influence & participation

Impact and range

By-laws

Internal regulations

Act on Management and Supervision of Legal Entities (WBTR)

Conflict of interests

Experience Experts

Proclaimer
Community

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Category: Familie weekends

Family Weekend 2024

On Saturday, May 25th and 26th, 2024, we organized our first international Family Weekend at StayOk in Apeldoorn, the Netherlands. A total of approximately 60 people attended from Belgium, Germany, the Netherlands, Austria, and Slovakia. In a beautiful forested area, we started on Saturday afternoon around 1 PM with a welcome reception. The children immediately […]

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Conditions

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Category: Familie weekends

Family Weekend 2024

ABOUT CMTC-OVM

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