Current and emerging pharmacotherapies for the treatment of vascular malformations
New developments in medications for vascular malformations are described in an article. We have created a summary of this. Several of our advisors are authors of this article. Read more
Rare Disease Day 2026
On Rare Diseases Day, February 28, 2026, patient organizations, healthcare professionals, and policymakers came together for an inspiring and educational day. The conference focused on collaboration, looking ahead, and above all, learning from one another. New energy at VSOP The day immediately felt like a fresh start. VSOP is clearly embarking on a new chapter. […]
Program and registration Family Weekend 2026
The program of our Family Weekend 2026 is ready and the registration is open! Alexandra and Naomi have created a challenging and varied program, so sign up now. Don’t wait too long! Registration closes on May 17! Program and registration
New members and financial administration system
As of 2026, we have implemented a new membership and financial administration system called Banster. This system offers a wide range of practical functionality for both our members and our organization. The main features are: Members/donors can view and update their own information (such as their address). They can also check the status of their […]
Translation team Hogeschool Zuyd 2026
Also this year, the team of Hogeschool Zuyd is once again committed to supporting our organization. Hello! We are team Zuyd Vertalingen, a translation agency run by students in the last year of the Maastricht School of Translation and Interpreting (Vertaalacademie). Every year, from February to June, a new team is there to help you […]
New advisor – Dr. Victor Volovici
Dr Volovici is a skull base and vascular neurosurgeon in the Erasmus MC and Principal Investigator of the Neurovascular Research Line. Current President of the Netherlands Neurovascular Society (NNG). His PhD focused partly on the methodology of clinical research, and his research delves in part into the methodology behind current research into intracranial aneurysm treatment. […]
Clinical trials for new drug against PROS
The biotech company Relay has developed an experimental drug for people with vascular malformations. This medication targets people with a PIK3CA mutation (PIK3CA-driven malformation). The company now plans to test it in clinical trials worldwide. More information
Special video – Paper Tiger
Paper Tiger (2025), is a dystopian short film created at Bournemouth Film school, and supported by CMTC-OVM. In the State of Libertas, citizens are mandated to consume ImmUnity: a gene altering medication. As Commander Josef Reeves struggles to suppress a rising civil resistance, he’s forced to confront his past. Will he stay loyal to the […]
CMTC-OVM Rare Disease Day video
Op 28 February 2026, Rare Disease Day will once again be organised worldwide. We have created a new Rare Disease Day video.
Promotion Dr. Patrick Kemperman
On Friday, December 12 2025, dermatologist Patrick Kemperman, one of our advisors, successfully defended his PhD at the University of Amsterdam. His research focused on so-called delusional infestation (also known as parasitic delusion): a rare psychiatric disorder in which individuals are convinced that parasites or insects are present on or in their body, despite the […]