Tattoo complications
The popularity of tattoos and permanent make-up is increasing worldwide. Unfortunately, 6 to 8% of tattooed people experience chronic tattoo complications. These complications range from infections and allergic reactions to autoimmune diseases such as sarcoidosis. Read more
South Africa – Erika & Leon Whitlock
We live in South Africa. Both of us work in the medical and pharmaceutical industry. We recently joined the organization (2023), when our daughter was born with what looked like severe port wine stains all over her body. Research into her condition of DCMO and local rare disease connections brought us to CMTC OVM NL […]
Blog Katie Allen November 2023
October was a busy month packed full heading to the Netherlands for the CMTC-OVM Patients’ Advocate Training and the Members’ Conference. I also had the fortunate opportunity to visit The Hague and see the Peace Palace. It is always exciting to meet other patients and families walking this rare vascular malformation path. The chance to […]
Events 2024
Thanks to the new subsidy scheme from the Dutch Ministry of Health, Welfare and Sport, we now receive €75,000 institutional subsidy. This allows us to organize additional activities such as a family weekend! In any case, we will now organize the following activities in 2024: Family weekend in May. Family Day in July. Members conference […]
EADV 2023 – Berlin
This year the global EADV (European Academy of Dermatology & Venereology) conference was organized in Berlin from October 11 – 14, 2023. It was another large conference with more than 600 speakers from more than 50 different countries with a total of 180 sessions and 15,800 participants. CMTC-OVM was represented by: Laurens Rorive, Naomi Rorive […]
CORD members meeting 2023
Our Patient Advocate Katie Allen attended the CORD membership meeting on behalf of our organization. After a quick fix on some name issues, we were off and running accepting the 2022 minutes. Then we moved on to the financial statements which are looking good. Finances are up from an increase in activity after COVID-19 but […]
Blog Katie Allen October 2023
Happy Fall and, from Canada, Happy Thanksgiving! One of our local farms does a pumpkin festival every autumn, as well as a tulip festival in the spring, it’s always fun to see how they repurpose their decorations between the events. The windmills are just as cute surrounded by pumpkins as in the tulips. These past […]
New: Parents Support Guide for the Unborn Child
In collaboration with Dr. Sarah Sheppard (National Institute of Health- NIH, USA), Dr. Dhyanam Shukla (University of Philadelphia), Erica Schindewolf MS LCGC (University of Philadelphia) and Jennifer Ortiz, we have developed a new parent support guide for the unborn child in multiple languages. Parents support guide unborn child
Become a member and pay only euro 25 this year!
We offer membership at a lower rate (only euro 25) for the rest of the year! You can also participate in our global members conference in the Netherlands during the last weekend of October. Member registration More information and registration members conferentie
Blog Katie Allen September 2023
Rocking the new brace! A few months ago, I posted that I had been cleared to purchase a new stabilizing knee brace and that I had received funding to support this expensive venture. As of this month, I officially started to wear the new 3D-printed stabilizing brace. For some context, I had a fibreglass brace […]