Blog Katie Allen March 2025
One of the most common questions anyone ever asks is “How do you explain…”, which makes sense, anyone with a visible difference knows this is a frequent question. However, it can be complicated by the rarity of some of our vascular malformations. If someone is wearing an insulin pump someone may ask what it is, […]
Vascular Anomalies Patient Day 2025 – Argentina
On Saturday, April 12, 2025, the Interdisciplinary Center for Vascular Anomalies at Sanatorio Mater Deiis in collaboration with our CMTC-OVM organization organized a meeting ‘Vascular Anomalies Patient Day’ for patients, their families and healthcare professionals in Buenos Aires, Argentina. This was arranged together with our Patient Advocate Josefina and several local doctors. Because Lex attended […]
World Congress Pediatric Dermatology 2025
This was our first time attending the World Congress of Pediatric Dermatology. It was organized in Buenos Aires from April 7 to April 11, 2025. The number of participants was around 2,500 doctors from all over the world. During this congress, four of our advisors gave presentations, and doctors from many countries whom we know […]
VAC Conference 2025 – Berlin
In 2023, the ‘International Conference on Vascular Anomalies’ (VAC) was organized. In 2025, this conference was held again, this time in Berlin from February 11 to 14. Around 170 physicians, professors, researchers, and various patient organizations participated. The aim of the conference is to share the latest developments in research (basic, translational, and clinical) to […]
Family weekend 2025: information and registration
You can participate again in our international Family Weekend in the Netherlands! Information and registration
Prof. Dr. Barend Mees (Netherlands) – Medical advisor
Prof. Dr. Barend Mees, acting head of the Department of Vascular Surgery at MUMC+ (Maastricht, the Netherlands), is an expert in vascular surgery with many years of experience in treating complex vascular diseases. Prof. Dr. Mees studied medicine at the LUMC in Leiden and completed his training as a general and vascular surgeon at Erasmus […]
09. Living loss
On this page you find the booklet about loss and grief of a patient. Living loss German Living loss English Living loss Dutch Living loss Spanish Living loss Italian Living loss French
Rare disease day 2025
On February 28, 2025, during the National Rare Disease Day Event at Soestdijk Palace, the prestigious Rare Angel Awards were presented to Karin Veldman, Rianne Oostenbrink, and 3FM Serious Request. National Rare Disease Day Event The National Rare Disease Day Event takes place every last day of February as part of International Rare Disease Day. […]
VAC 2025 – Berlin
In 2023, the ‘international conference on Vascular Anomalies’ (VAC) was organized. In 2025, this conference was organized again and this year in Berlin from February 11 to 14. Around 170 physicians, professors, researchers and various patient organizations participated. The aim of the conference is to share the latest developments in research (basic, translational and clinical) […]
VASCERN Conference 2025 – Berlin
On February 10-11, 2025, the VASCA Winter Meeting brought together dedicated medical professionals, researchers, and patient representatives to share insights and collaborate on improving care for individuals with vascular anomalies. VASCERN is one of the European Reference Networks (ERNs) focused on rare multi system vascular diseases. As an organization, we are affiliated with both ERN […]