You & your blood vessels — your life, your pace
Are you between 15 and 25 years old and living with a rare vascular condition (such as CMTC, OVM, or another vascular malformation)? Then you probably know what it’s like to have questions that not everyone can answer — about your body, your future, school or work, friendships, relationships, and the care you need.
On this website, you’ll find clear and reliable information about vascular conditions, created especially for young people and those around them. No complicated medical language, but explanations that help you understand what’s happening in your body and what that may mean for you.
In this section of the website, you’ll find for example:
Informative resources about rare vascular conditions.
Personal stories from other young people living with the same or similar conditions.
Video interviews in which young people and lived-experience experts share their experiences — honest, relatable, and sometimes confronting.
Information and tips about the transition from pediatric care to adult care (transition care): what changes, what it means for you, and how to prepare for it.
The step from youth care to adult care can feel daunting. You’re given more personal responsibility, new doctors, and sometimes different expectations. At cmtc.nl, we help you better understand this transition and support you in having stronger, more confident conversations with healthcare providers.
You don’t have to do this alone.
Here, you’ll meet others who understand what it’s like to live with a rare vascular condition — and who show that there is space for your story, your choices, and your future.