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Living with

Living with a Vascular Malformation — Your Story Matters

You and your condition
A vascular malformation is often visible, but sometimes hidden. It can affect your appearance and your self-image — think of skin marks, asymmetry, or spots that make you different. It’s natural to have questions about your identity and how to cope with insecurities.

Home: space and recognition
Don’t underestimate the importance of support from those around you. Your self-image can be affected, especially if you are dealing with fatigue, treatments, or uncertainty.

School & work: feeling included
At school or work, you just want to be “young,” without extra attention. CMTC-OVM provides tools, like a special brochure for teachers, to promote understanding and inclusion — including tips on bullying, psychological effects, and communication.
Through their Pedia, you can find information on psychological impact, self-confidence, patient rights, and ways to share your story.

(Intimate) relationships: honesty & confidence
Questions like “What do I tell a date?” or “Do I feel different?” are normal. CMTC-OVM addresses these topics through blogs and videos for young adults — accessible, without medical jargon, but relatable.

Travel & new environments
Want to study, work, or travel, even with your condition? It helps to know your rights, how to arrange accessibility, and what preparations you can make. CMTC-OVM creates content that addresses these questions.

Explaining your condition to others
How do you explain what a vascular malformation is without it feeling intimidating? CMTC-OVM provides informational brochures in multiple languages, videos, and a knowledge base (Pedia) that is clear, reliable, and up-to-date.
You also gain access to a community where you can share your story — via blogs, private forums, or events.

Your life, your choices — with CMTC-OVM

  • Find recognition and understanding from young people who know what it’s like.

  • Help others understand, with brochures, folders, and clear language.

  • Boost your self-confidence — in relationships, at school, or while traveling.

  • Use reliable information about medical, legal, and social aspects.

  • Participate in projects and share your experiences through blogs, videos, or events.

 

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