Blog Katie Allen Feb. 2023
Happy Rare Disease Day! Like many patients with a rare disease, the reality is many of my doctors are not in my city. So I travel to larger centres for treatments or appointments with specialists. When I was little that meant flying from Saskatchewan to Vancouver for a meeting with the Vascular Anomalies Team at […]
Rare disease day 2023 – video Katie Allen
Katie is one of our Patient Advocates from Canada and shares a bit of her experience. We not only support people with CMTC but also with Other Vascular Malformations such as Klippel-Trenaunay Syndrome (KTS) and Diffuse Capillary Malformation with Overgrowth (DCMO).
Dr. Yakir Levin (USA) – Medical advisor
Yakir Levin, MD, PhD is a physician scientist at the Massachusetts General Hospital., where he practices laser, cosmetic, and medical dermatology. He completed his PhD in electrical engineering as well as his MD at Stanford University. After completion of his dermatology residency at Boston University, where he served as chief resident, he completed a two-year […]
