Blog Katie Allen May 2023
Spring has finally hit the west coast of Canada, though it’s probably more accurate to say we skipped spring entirely and went straight to summer. Our little town had its second annual tulip festival, and while it may be much smaller than the tulip fields of Amsterdam, it was still so pretty that you just […]
Use patients’ experience!
People who suffer from cardiovascular disorders see their doctor for ten minutes only, twice a year, on average. The remaining 8765 hours, they, or their caretaker(s), have to deal with their disorder by themselves. Taking medication in time, dealing with side effects, balancing nutrition, adjusting their way of living. The patient knows better than anyone […]
CORD 2023 – rare disease day 2023
Overall, the tone of this meeting was very positive. One of the major discussions of last November’s meeting was about when the Canadian Federal Government was going to announce the Rare Disease Strategy they had been promising since 2019. A week before this conference the beginning stages of a Rare Disease Drug Strategy was announced […]
