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Blog Katie Allen February 2024

First off, Happy Rare Disease Day 2024! Last month we delved into the realities of having people stare at or bizarrely interact with you because of a skin difference. The sad reality is, that when you have a visible difference, this is going to be a part of life, and having a few strategies to […]

Blog Arianna Faro February 2024

Hi there! My name is Arianna Faro; I am 32 years of age and was diagnosed with Klippel-Trenaunay syndrome at birth. KTS manifests itself a bit differently in each patient, but for me it impacts my left leg, foot, private areas and heart. As a result of the condition, I have endured over 50 surgeries […]

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