EADV 2023 – Berlin
This year the global EADV (European Academy of Dermatology & Venereology) conference was organized in Berlin from October 11 – 14, 2023. It was another large conference with more than 600 speakers from more than 50 different countries with a total of 180 sessions and 15,800 participants. CMTC-OVM was represented by: Laurens Rorive, Naomi Rorive […]
CORD members meeting 2023
Our Patient Advocate Katie Allen attended the CORD membership meeting on behalf of our organization. After a quick fix on some name issues, we were off and running accepting the 2022 minutes. Then we moved on to the financial statements which are looking good. Finances are up from an increase in activity after COVID-19 but […]
Eurordis 2023 – Stockholm
Finally, Eurordis was able to organize a ‘real’ in person members conference. The last time this took place was in 2019 before the Corona pandemic. From May 25 to 27, 2023 250 people from all over Europe gathered in Stockholm, Sweden. 25th of May On the 25th of May there were 2 parallel sessions held: […]
ISSVA 2023 – Boston
The ISSVA (International Society for the Study of Vascular Anomalies) is a multidisciplinary international organization of doctors, scientists and healthcare providers united by an interest in vascular anomalies. The ISSVA organised a worldwide conference in Boston (USA) from 19 to 21 April. There were 279 participants physically present and 263 participants joined ‘online’. The title of the conference […]
VAC 2023 – Brussels
Organised by the DeDuve Institute in Brussels, Belgium, the Vascular Anomalies Conference took place from the 31st of January to the 3rd of February. One of the directors of the Institute is Prof. Dr. Miikka, Vikkula, who is also one of our advisors. There were around 220 people from around 15 countries present, including, among […]
CORD 2023 – rare disease day 2023
Overall, the tone of this meeting was very positive. One of the major discussions of last November’s meeting was about when the Canadian Federal Government was going to announce the Rare Disease Strategy they had been promising since 2019. A week before this conference the beginning stages of a Rare Disease Drug Strategy was announced […]
Rare Diseases Day Netherlands 2023
On Tuesday, February 28, 2023, the Rare Angel Awards were presented in Amsterdam to three award winners because of their special significance for people with rare disorders. The Awards have been presented annually since 2009. Rare Angel in the category ‘patient or loved one’ is Marjolein van Kessel because of her tremendous effort for patients […]
CORD 2022 – Toronto
The Canadian Organization for Rare Diseases (CORD) hosted the Rare Disease 2022 Fall Conference in Toronto on November 21-22, 2022. Katie Allen (online) and Anna Janzen (physical) participated in this conference on behalf of our organization. Below are a number of short reports from various speakers. Summary Overall, it was an informative and goal-oriented conference. […]
NORD 2022 – Washington DC
On October 17 and 18, 2022, the US National Organization for Rare Disorders (NORD®) hosted the Conference on Rare Diseases and Orphan Drugs. More than 830 enthusiastic attendees from around the world gathered to address and take action on the opportunities and challenges facing the rare disease community. Items on the agenda included accelerated approval, […]
EADV 2022 – Milan
From 7 to 10 September 2022, the European Academy of Dermatology and Venereology (EADV) conference was again organized in Milan. The number of participants was 14,000 from over 120 countries around the world and 600+ speakers in 170 different sessions. Booth Our organization had a stand together with Naevus Global during this conference. For example, […]
