Private medical data should receive better legal protection
From 2020, any Dutch man or woman who wants to collect, inspect or manage their personal health data via a self-selected digital tool (like an app or a website) can. The Netherlands Patients Federation believes that data should receive more protection, since so far, it has not been regulated sufficiently. From 2020, medical data, whether or not included […]
The Dutch Parliament meeting Drs. Corinne Ellemeet 21 January 2019
Monday, January 21, 2019 four representatives of our patient organisations in the Netherlands were invited for a consultation with the Member of Parliament (the Dutch Parliament) Corinne Ellemeet. The following persons were invited: Prof. Rob Heethaar of Angelman Syndrome Netherlands. Carin King of the Diabetes Association. Fred Lamond of the NFK. Lex van der Heijden […]
The Dutch Parliament meeting Mr. Rens Raemakers 19 November 2018
On Monday 19 November 2018 four representatives of the patient organisations in the Netherlands were invited to consult with the Dutch parliament member Rens Raemakers. The following persons were invited: Prof. Rob Heethaar of Angelman syndrome The Netherlands. Carin Koning of the Diabetes Association. Fred Lindhout of the NFK. Lex van der Heijden of CMTC-OVM. […]
Guest lecturer University Groningen 18 September 2018
On 18 September 2018, Lex van der Heijden and Marjolein van Kessel (secretary skin patients the Netherlands and patient advocate Naevus International) held a guest lecture about ‘Entrepreneurship for medical sciences’. They talked about the non-profit organisation they established, what issues they faced and how they solved them. Van Kessel and Van der Heijden had […]
New: Personal Psychological Advice
For more than 15 years we have been offering personal medical advice during our global conferences in the Netherlands.As from our Congress in 2018 we will start giving personal advice about psychological and psycho social problems and questions. Participants can talk to our medical psychologist Dr. Wouter van der Schaar. From experience we know that […]
Impact and range
The terms ‘impact’ and ‘range’ have been circulating in the Netherlands since about 2015. The Ministry of Health, Welfare and Sport (VWS, our subsidy provider) has now expressed those terms in the new subsidy provision which, in 2023, will apply to to the institutional subsidy. Until 2023, patient organisations will receive a subsidy based on, among […]
CMTC-OVM publication newspaper ‘Trouw’
On 29 June 2018 we made a publication in the newspaper Trouw in the appendix ‘complex care’. Healthcare providers in the Netherlands see care requests from clients change. They receive more and more clients with complex care questions and experience an increase in care demands that extend across different domains. We got the complete back […]
New Privacy legislation
From 25 May 2018 every European organization that deals with personal data must comply with the new ‘General Data Protection Regulation’ (GDPR). Our organization also has to comply to this legislation. What is this law and why is it new? Companies, governments, non-profit organizations etc. increasingly process large amounts of personal data. For example: medical […]
Donation dr. C.J. Vaillant Fonds
We received a € 5,000 contribution from the Dr. C.J. Vaillant Fund for our New Patients Program! We will use this contribution for the modernization of the current website.
Steve Groft meets the Pope
One of our ambassadors, Steve Groft, was present in Rome at a Conference on regenerative medicine (reforming or replacing body parts or organs) with the focus on genes and stem cell therapy. The conference focussed on for instance patients and their families, rare diseases, cancer, getting older, research consortia and networks, philanthropy, production, distribution and […]