Rare disease day 2024
This year, our Patient Advocates from Canada, Austria and South Africa were active. On the final day of February, this year that was the 29th, Rare Disease Day is organised by the VSOP, the Dutch National Patient Alliance for Rare and Genetic Diseases. During the evening programme, the Rare Angel Awards were presented to three […]
Our Patient Advocate Erika (South Africa) 2nd place Eurordis Photo contest 2024
Once a year, around Rare Disease Day, the European Organization for Rare Diseases (Eurordis) organizes, among other things, a photo competition about patients. Our Patient Advocate Erika from South Africa won the second prize! We are very proud of our Erika! More about our Erika
Translation team Zuyd University of Applied Sciences 2024
Our organization operates worldwide, which means that we offer our information in multiple languages. For example, our website is available in English and Dutch and our information leaflets in at least German, English, French, Dutch and Spanish. The translation work takes quite some time and we are always looking for volunteers to help. Zuyd Vertalingen […]
Skin at school
Skin complaints are often underestimated, while research shows that the quality of life of people with chronic conditions decreases and that the impact of bullying on children with skin conditions is huge. Lack of basic knowledge about the skin is a major factor in this. The Dutch Society for Dermatology and Venereology has noticed that […]
Laser in dermatology: past, present and future
The rise of the laser in dermatology brought about a true revolution in the treatment of various skin conditions. Laser technologies have paved the way for both cosmetic and medical applications, providing dermatologists with a range of effective and safe treatment options. In this article we describe in a nutshell the history, contemporary applications and […]
Important news about sirolimus
In a groundbreaking development, the interim analysis of the large multicenter Phase III VASE (Vascular Anomaly-Sirolimus Europe) trial, using sirolimus (Rapamune from Pfizer), to address slow-flow vascular malformations has been published in JCI Insight. This marks a significant milestone in the ongoing study and provides insight into the potential efficacy of this treatment. Read more
Dermatology from a broader view: mind-body connection
Mind-body connection is a term that describes a connection between the mental layer and the body and in the case of a skin disease, the skin. Mind-body techniques is a heterogeneous group of techniques that induces changes in the mental layer through training or exercises in order to literally or figuratively experience relief from physical […]
Christmas and New Year Wish 2024
The board of our CMTC-OVM organization wishes everyone a wonderful Christmas and a healthy and prosperous 2024! Hope to see you (again)!
Tattoo complications
The popularity of tattoos and permanent make-up is increasing worldwide. Unfortunately, 6 to 8% of tattooed people experience chronic tattoo complications. These complications range from infections and allergic reactions to autoimmune diseases such as sarcoidosis. Read more
Events 2024
Thanks to the new subsidy scheme from the Dutch Ministry of Health, Welfare and Sport, we now receive €75,000 institutional subsidy. This allows us to organize additional activities such as a family weekend! In any case, we will now organize the following activities in 2024: Family weekend in May. Family Day in July. Members conference […]
