ISSVA 2025 – Paris
The ISSVA (International Society for the Study of Vascular Anomalies) held another international congress from April 23–25, 2025, in Paris. A total of 410 participants attended in person and 162 online, representing 49 countries. ISSVA is the global organization in the field of vascular malformations. Photography and video recording of the sessions were not permitted, […]
Blog Katie Allen April 2025
Conference days! This will be a short and sweet blog this month as I have been having an incredibly exciting time at conferences for the past few weeks. I had the absolute privilege to go to the Globalskin Conference 2025. This was an incredibly diverse dermatology conference. I was quite nervous to attend this event […]
Global Skin Foundation 2025 – Prague
From April 24–27, 2025, GlobalSkin hosted the Champion 2025 Conference, at the Vienna House by Wyndham Diplomat in Prague, Czech Republic. The event was attended by over 200 attendees including 163 skin patient leaders from 59 countries, along with speakers, industry partners, and key stakeholders. Themed “Champion”, the conference aimed to inspire, connect, and celebrate […]
Blog Katie Allen March 2025
One of the most common questions anyone ever asks is “How do you explain…”, which makes sense, anyone with a visible difference knows this is a frequent question. However, it can be complicated by the rarity of some of our vascular malformations. If someone is wearing an insulin pump someone may ask what it is, […]
Vascular Anomalies Patient Day 2025 – Argentina
On Saturday, April 12, 2025, the Interdisciplinary Center for Vascular Anomalies at Sanatorio Mater Deiis in collaboration with our CMTC-OVM organization organized a meeting ‘Vascular Anomalies Patient Day’ for patients, their families and healthcare professionals in Buenos Aires, Argentina. This was arranged together with our Patient Advocate Josefina and several local doctors. Because Lex attended […]
World Congress Pediatric Dermatology 2025
This was our first time attending the World Congress of Pediatric Dermatology. It was organized in Buenos Aires from April 7 to April 11, 2025. The number of participants was around 2,500 doctors from all over the world. During this congress, four of our advisors gave presentations, and doctors from many countries whom we know […]
VAC Conference 2025 – Berlin
In 2023, the ‘International Conference on Vascular Anomalies’ (VAC) was organized. In 2025, this conference was held again, this time in Berlin from February 11 to 14. Around 170 physicians, professors, researchers, and various patient organizations participated. The aim of the conference is to share the latest developments in research (basic, translational, and clinical) to […]
Family weekend 2025: information and registration
You can participate again in our international Family Weekend in the Netherlands! Information and registration
Prof. Dr. Barend Mees (Netherlands) – Medical advisor
Prof. Dr. Barend Mees, acting head of the Department of Vascular Surgery at MUMC+ (Maastricht, the Netherlands), is an expert in vascular surgery with many years of experience in treating complex vascular diseases. Prof. Dr. Mees studied medicine at the LUMC in Leiden and completed his training as a general and vascular surgeon at Erasmus […]
09. Living Loss
Here you find a small book with information about the grief that comes with losing a loved one Living Loss German Living Loss English Living Loss Dutch Living Loss Spanish Living Loss Italian Living Loss French