Design Delicious – Netherlands
[vc_section full_width=”stretch_row” css=”.vc_custom_1585128400841{background-color: #576283 !important;}”][vc_row][vc_column][vc_empty_space][/vc_column][/vc_row][vc_row][vc_column width=”1/3″][/vc_column][vc_column width=”2/3″][vc_empty_space][mk_fancy_title strip_tags=”true” tag_name=”h1″ color=”#ffffff” size=”60″ line_height=”90″ font_weight=”bolder” margin_bottom=”0″ font_family=”none”]Design Delicious[/mk_fancy_title][mk_divider style=”thick_solid” divider_width=”custom_width” custom_width=”70″ align=”left” border_color=”#a1aabe” visibility=”hidden-sm”][mk_fancy_title strip_tags=”true” tag_name=”h5″ color=”#ffffff” size=”16″ font_weight=”400″ margin_bottom=”0″ font_family=”none”]Sponsor[/mk_fancy_title][/vc_column][/vc_row][vc_row][vc_column][vc_empty_space height=”64px”][/vc_column][/vc_row][/vc_section][vc_section full_width=”stretch_row” css=”.vc_custom_1585137324203{background-color: #ffffff !important;}”][vc_row][vc_column][vc_empty_space][/vc_column][/vc_row][vc_row][vc_column width=”1/3″][vc_wp_custommenu title=”Sponsors” nav_menu=”281″ el_class=”leftsubmenu”][/vc_column][vc_column width=”2/3″][mk_image src=”https://www.cmtc.nl/wp-content/uploads/2020/04/logo-ddcm.png” image_size=”full” link=”http://www.designdelicious.nl/” target=”_blank”][vc_column_text disable_pattern=”false” margin_bottom=”10″ css=”.vc_custom_1593502444045{margin-bottom: 0px !important;}”][/vc_column_text][/vc_column][/vc_row][/vc_section]
Prof. Dr. Jan Peter Balkenende (Netherlands) – Supporter
One of our supporters is former Prime Minister Prof. Dr. Jan Peter Balkenende. He studied economic and social history and law at the Free University of Amsterdam. He presented his doctoral thesis on ‘Government regulation and social organizations’ and in 1993 he was named professor by special appointment. He served as prime minister from July […]
Dr. Stephen C. Groft (USA) – Ambassador
Dr. Stephen C. Groft has been the initiator and Director of the National Institute of Health (NIH, USA) of the Rare Diseases Office since the start in May 1983. He has been providing guidance and encouragement to rare disease patient advocates groups since the very beginning. He and his staff are well known in the […]
Lex van der Heijden – President
Lex is the father of a young lady with CMTC (she’s the reason for this organization), founder (1997) and chairman of the global organization. In the past he was ICT Project Manager and has worked for example for IBM Global Services. In 2012 he switched to devote his time and energy full-time (unpaid) to his […]
Anja Fluijt – Secretary
My name is Anja Fluijt and I am the mother of Niels born in 2004 with many spots throughout the body. By an attending paediatrician, we received a referral to the Sofia Children’s Hospital in Rotterdam within 3 months, where Dr. Oranje gave the diagnosis CMTC. For so long we are also a member of […]
The story of Sanne (Belgium)
My name is Sanne and on 1st July 2017, I became the proud mother of my eldest daughter. Soon after the birth, I noticed purple marks on her, but at the hospital, no-one said anything so we were not immediately concerned. I had also seen a bald spot and a lump above her ear, which […]
Eurordis 2020 – online
The annual conference of Eurordis (European organization for rare diseases) was originally planned for May 14th and 15th in Stockholm (Sweden). This has been changed to an online conference because of the COVID-19/Corona virus. Originally more than 1500 participants from 57 countries were to attend. Besides being able to attend various presentations, participants would have […]
Farina Mitchell (Australia)
I am Farina Mitchell and I was born in January 1959 in Sydney Australia, the first child of Guy and Dorrie. My vascular malformation is down my left side, predominantly on my hand and arm but also across my chest, back, bottom, and splattered down my leg to my toes. I think it would be […]
Family day moved to 2021
The Efteling has informed us that because of the COVID-19 / Corona virus, no groups are allowed to visit the Efteling. We had already shifted our global Family Day to August 29, 2020, but it will not take place this year at all. We immediately agreed to a new date with the Efteling on Saturday […]
