Webinars
We regularly organize public webinars. Reports are also made of these webinars. Webinar overview and registration Webinar reports Do you have an idea for a webinar topic? Please contact us
Becca (USA)
When I entered the world on July 10, 2009 everyone thought things were going to get easier. I guess I proved everyone wrong! When I was born I had a very unusual coloring on my right leg that the doctors had never seen before. They first thought I had broken or dislocated my leg while […]
Katie (Canada)
My name is Katie and I was diagnosed with CMTC when I was 5 months old. I am now 28 years old (2021) and have lived with markings down the right side of my body and the left side of my face, neck, and skull all of my life. I have had a few complications […]
Webinar 26 June 2021 – Laser and vascular malformations
We organized this public webinar on June 26, 2021 with the topic ‘laser and vascular malformations’ by Dr. Albert Wolkerstorfer (Amsterdam University Medical Centers). In his webinar, Albert Wolkerstorfer discusses laser treatment of vascular malformations. Dr. Albert Wolkerstorfer is a dermatologist at the AMC (Amsterdam Medical Centre) specialising in pigmentation disorders and laser treatment of […]
Canada – Katie Allen
My name is Katie Allen and I was diagnosed with CMTC when I was around 5 months old. I have marks covering the right side of my body and the left side of my neck, face, and head. Additionally, I have experience with limb length discrepancy, and other impacts such as difficulties maintaining body temperature […]
