Alexandra Haan – Treasurer
My name is Alexandra Haan and I am a single mother of two. My eldest has a venous-lymphatic malformation around his left eye, temple, nose, forehead, and in the skull, and my youngest has a developmental language disorder. We live in Dordrecht and have travelled a lot (to New York, Berlin, Boston) due to my […]
Laurens Rorive – Communication
My name is Laurens Rorive and I am Otis’ father. Otis was born in 2019 with marks covering his body, and so began our medical search. Fortunately, four days after his birth, we ended up at the Sofia Children’s Hospital for the WEVAR (WErkgroep VAatafwijkingen Rotterdam – Vascular Malformations Working Group Rotterdam) consultation hour. Due […]
