Prof. Dr. Laurence Boon (Belgium) – Medical advisor

Prof. Dr. LM Boon became a Plastic Surgeon in 1996 and obtained her PhD in 2003 at the Faculty of Medicine in UCL, Brussels. She spent two years at the Children’s Hospital, Boston, Harvard Medical School, under the supervision of Prof. John B. Mulliken, to specialize in vascular anomalies. She is the Coordinator of the […]
Dr. Andrea Diociaiuti (Italy) – Medical advisor

Andrea Diociaiuti is currently responsible for the Center of Chronic and Complex Disease and Genodermatoses of Bambino Gesù Children’s Hospital in Rome. Graduated in Medicine in 1995 and specialized in Dermatology and Venereology in 1998 at the University of Sacred Hearth in Rome. He achieved his Ph.D. in Oncological Dermatology and then a II level […]
Prof. Dr. Suzanne Pasmans (Netherlands) – Medical advisor

Suzanne Pasmans completed her medical training in Leiden and graduated cum laude. In 1996 she graduated from the University of Amsterdam on IgE -dependent histamine -releasing activity, and has a degree as an immunologist. At the Institute Curie, Inserm, Paris she studied molecular biological research. In 2000 she completed training as a Dermatologist /Venereal in […]
Prof. Dr. Miikka Vikkula (Belgium) – Medical advisor

Prof. Miikka Vikkula MD PhD is Co-Director of the Human Genetics de Duve Institute Human Molecular Genetics (De Duve Institute, Université Catholique de Louvain (UCL), Brussels, Belgium). Prof. Vikkula obtained his M.D. at the University of Helsinki in 1992 and his Ph.D. in molecular genetics, in 1993. He was a Research Associate Harvard Medical School […]
Prof. Dr. Chantal van der Horst (Netherlands) – Medical advisor

Since 1985 – the beginning of her training as a plastic surgeon – Prof. Dr. van der Horst has been interested in the analysis and treatment of vascular malformations and hemangiomas. She also has an interest in congenital anomalies in general. She has been a staff member at the AMC since 1989. In 1990 she […]
Dr. Patrick Kemperman (Netherlands) – Psychological advisor

Patrick Kemperman works as a dermatologist at the UMC (Academic Medical Centre) in Amsterdam, the Netherlands and the Waterlandziekenhuis in Purmerend, the Netherlands. He is a general dermatologist who focusses on psycho dermatology and itching. He is driven by a strong desire to bridge the gap between the treatment of physical and psycho social problems […]
Dr. Millan Patel (Canada) – Medical advisor

Millan Patel is a clinical assistant professor in the Department of Medical Genetics at the University of British Columbia and works as a clinical geneticist at BC’s Children’s and Women’s Hospital in Vancouver, Canada. He has research experience in Drosophila, mouse and human genetics. He is a co-founder and Research Director for the Rare Disease […]
Dr. Margaret Lee (USA) – Medical advisor

Margaret Lee, MD, PhD is an Assistant Professor of Dermatology and Pediatrics at the Boston University School of Medicine. She earned her MD from BUSM in 1999 and a PhD in Pathology & Laboratory Medicine in 2005. She trained for a year in paediatrics at SUNY Downstate, followed by the BU-Tufts Combined Dermatology Residency Program […]
Dr. Christianne van Nieuwenhoven (Netherlands) – Medical advisor

Dr. Christianne van Nieuwenhoven is head of the Hand Surgery section of the Plastic surgery department at the Erasmus Medical Center and Team leader of the Children ‘s Hands Team at the Erasmus MC – Sophia Children’s Hospital in Rotterdam (the Netherlands). After her training as a plastic surgeon she followed the Dutch Wrist and […]
Dr. Charlène Oduber (Aruba) – Medical advisor

Doctor Charlène Oduber finished her doctorate on 12 January 2011 on Clinical aspects of vascular malformations deregulated growth. This included a clinical and genetic study of congenital vascular malformations combined with locally impaired growth of bone and soft tissue. This is a joint venture between Academic Medical Center in Amsterdam and the Academic Hospital Maastricht. […]