Eurordis 2024 – Brussels
From May 15-16, 2024, Eurordis (the European Organization for Rare Diseases) organized a member conference in Brussels (Belgium). Around 400 participants attended in person and around 400 participants attended online. 15 May The meeting began with a video message from the Belgian Minister Vandenbroucke, in which he mentioned that around 30 million people with rare […]
Eurordis 2023 – Stockholm
Finally, Eurordis was able to organize a ‘real’ in person members conference. The last time this took place was in 2019 before the Corona pandemic. From May 25 to 27, 2023 250 people from all over Europe gathered in Stockholm, Sweden. 25th of May On the 25th of May there were 2 parallel sessions held: […]
Eurordis 2021 – online
The annual conference of Eurordis (European Organization for Rare Diseases) this year was only an online member meeting and not a conference. As a result, there is no report.
Eurordis 2022 – online
The European Conference on Rare Diseases and Orphan Products is recognised globally as the largest, patient-led rare disease event in which collaborative dialogue, learning, and conversation take place, forming the groundwork to shape future rare disease policies. The 11th edition of the European Conference on Rare Diseases & Orphan Products (ECRD) was a virtual event […]
Eurordis 2020 – online
The annual conference of Eurordis (European organization for rare diseases) was originally planned for May 14th and 15th in Stockholm (Sweden). This has been changed to an online conference because of the COVID-19/Corona virus. Originally more than 1500 participants from 57 countries were to attend. Besides being able to attend various presentations, participants would have […]
Eurordis 2019 – Bucharest
The European organisation for rare diseases Eurordis organised a members conference in Bucharest (Romania) from 16 to 19 May. On behalf of the CMTC-OVM organisation, the chairman Lex van der Heijden participated in this conference. Around 270 people attended this conference. First day The first day was meant to bring together European Patient Advocates Groups […]
Eurordis 2018 – Vienna
From 10 to 12 May 2018, the European Organization for Rare Diseases Eurordis (www.eurordis.org) organized a global conference with the theme ‘collaborative strategies to leave no one behind. This year was the conference in Vienna. More than 900 people from 58 countries were present and 120 speakers. In addition, there were many poster sessions that […]
Eurordis 2017 – Budapest
The European Organization for rare diseases, Eurordis, has achieved a great deal in the past 20 years. This became evident during the annual conference in Budapest, Hungary on 19th and 20th May. Especially the start of European Reference Networks has been an important step forward in improving access to diagnosis and treatment of rare diseases. […]
Eurordis 2016 – Edinburgh
The European Organization for rare diseases Eurordis held its annual conference this year in Edinburgh, Scotland on May 26-28. This year not only members were invited, but also all sorts of other organizations and companies. The total number of participants this year was around 750! On behalf of the CMTC-OVM organization, Lex van der Heijden […]
Eurordis 2014 – Berlin
From May 8-10, 2014, we participated in the global Eurordis meeting for members and this year there were also various (pharmaceutical) companies represented.This year the meeting took place at Hotel Andel in Berlin, Germany. More than 800 people from all over the world were present (including Peru and Australia)! On a large world map, the […]
