WCRSD 2022 – Paris
The first Global Congress on Rare Skin Diseases (WCRSD) was held in Paris from 7 to 9 June 2022. The main aim was to bring together medical teams, scientists, patient representatives, policymakers and industrial teams. The goal was to encourage collaboration between specialists from different areas and countries and to encourage more research and clinical […]
VASCA Workgroup Conference spring 2022 – Brussels
On the 6th of April 2022, the annual Spring Meeting of the VASCA work group (a division of ERN VASCERN) was organised in Brussels. VASCERN is one of the European Reference Networks (ERNs) in the field of rare multisystemic vascular diseases. We as an organisation are affiliated with the ERNs VASCERN and SKIN. All care […]
VASCERN Conference 2021 – Paris
From September 7 to 9, 2021, the annual VASCERN congress was organized in Paris. VASCERN is one of the European Reference Networks (ERNs) in the field of rare multi-systemic vascular diseases. We as an organization are affiliated with both the ERN VASCERN and SKIN. All healthcare providers are part of recognized reference/excellence centers in their […]
Training ERN Skin 2019 – Ghent
In 2017, the European Reference Networks (ERNs) were established in collaboration with the European Organisation for Rare Diseases Eurordis (www.eurordis.org). ERNs are virtual networks of healthcare providers from all over Europe. Their goal is to start a debate on complex or rare diseases and conditions that require highly specialised treatments and a combination of knowledge and resources. […]
Rare diseases conference Austria 2019
Silke and Alexander participated in the rare diseases conference in Austria (Salzburg) on behalf of our organisation on 8 and 9 November 2019.On Saturday, the joint meeting began with registration at 8 a.m. At 9 a.m. we had the first meeting with lecturers on periodic fever syndromes and familial diffuse stomach cancer.At 10 a.m. we […]
