New: Parents Support Guide for the Unborn Child
In collaboration with Dr. Sarah Sheppard (National Institute of Health- NIH, USA), Dr. Dhyanam Shukla (University of Philadelphia), Erica Schindewolf MS LCGC (University of Philadelphia) and Jennifer Ortiz, we have developed a new parent support guide for the unborn child in multiple languages. Parents support guide unborn child
Become a member and pay only euro 25 this year!
We offer membership at a lower rate (only euro 25) for the rest of the year! You can also participate in our global members conference in the Netherlands during the last weekend of October. Member registration More information and registration members conferentie
Agenda and registration worldwide member conference Netherlands 2023
On Friday evening, October 27, our worldwide membership conference will start again in the Netherlands! Saturday 28 October we have a very varied program for all ages including dinner. On Sunday 29 October we will also go further and close our members conference after lunch. At the request of our members, we offer sessions in […]
Data allowed on servers in the USA
The European Union and the USA have reached an agreement on the exchange of data belonging to European citizens. This means that companies are once again allowed to save our data on American servers. One of the new amendments is that American intelligence agencies cannot unjustifiably access personal data from the EU. Furthermore, an agency […]
Participate in groundbreaking research
As an organization, CMTC-OVM has been a member of the organization Global Skin for many years now. The GRIDD study (Global Research on the Impact of Dermatological Diseases) collects international data on the impact of skin (dermatological) disorders on the lives of patients. To collect this data, a new questionnaire “Patient-Reported Impact of Dermatological Diseases” […]
Use patients’ experience!
People who suffer from cardiovascular disorders see their doctor for ten minutes only, twice a year, on average. The remaining 8765 hours, they, or their caretaker(s), have to deal with their disorder by themselves. Taking medication in time, dealing with side effects, balancing nutrition, adjusting their way of living. The patient knows better than anyone […]
New: teachers brochures!
In collaboration with, among others, 2 psychologists from 2 different countries, we have developed a new series of brochures in several languages for the student to take to school and to give to the teacher. Meer informatie
Another Patient Advocate training in the Netherlands!
In 2022 we provided a special Patient Advocate (PA) training in the Netherlands. At our expense, we had PA’s come to the Netherlands for this self-developed training. It is now time for the ‘next step’. We have again received a subsidy (around EUR 24,000) for this next step, which consists of: Complete the PA handbook. […]
Our events in 2023
During our global members’ conference in 2022, we identified the needs of our members, among other things. One of the things that came out of this is that people would like more mutual contact moments. These are important signals that we have started working on. We are organizing our first Dutch Spring Meeting in Avifauna […]
Rare Diseases Day Netherlands 2023
On Tuesday, February 28, 2023, the Rare Angel Awards were presented in Amsterdam to three award winners because of their special significance for people with rare disorders. The Awards have been presented annually since 2009. Rare Angel in the category ‘patient or loved one’ is Marjolein van Kessel because of her tremendous effort for patients […]
