USA – Amanda Starkey
I am an Industrial/Organizational Psychologist and mother of a young child with CMTC from Michigan, USA. I work as a technical assistance liaison for a mental health advocacy program called SOAR (SSI/SSDI Outreach Access and Recovery). We provide technical support and training for mental health providers, homeless serving agencies, family members, and clients looking for […]
Poland – Dominika Blacharska
My name is Dominika! I’m 24 years old. I live in Szczecin in Poland and I’m a student. I have a bachelor’s degree in management, with a specialism in public organisations and public relations. I’m currently in the last year of my master’s study in administration. I’m engaged to Sebastian. I have HAE (hereditary angioedema), […]
United Kingdom – Nikki & Matthew Bailey
I am Nikki and my husband is Matthew. We are both Scottish but live in Wales. I am a Social Worker and Matthew is a senior Project Manager. Matthew and I are the parents of six children with ages ranging from 25yrs – 4 yrs. Alfie is our youngest child. We had an uncomplicated pregnancy […]
Poland – Dorota Blacharska
My name is Dorota Blacharska and I live in Szczecin in Poland. I’m a nurse and work in the Department of neurosurgery. I am married to Mariusz (54) and we have three children: Krzysztof (24), Dominika (20) and Ania (7). They all have HAEi and Ania has CMTC. My goal is to increase the knowledge […]
Austria – Silke Rotter
My name is Silke Rotter and I’m 39 years (2019) old. I received my education in Vienna and have worked since 2000 for the Viennese Government. In 2002 I married Alexander (1979). He works as a truck driver for a global pharmaceutical company. We have three children; they were born in 2003, 2005 and 2016. […]
