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Naomi Rorive – van der Sar- CMTC-OVM Activities Team (CAT)

My name is Naomi Rorive–van der Sar. I am the wife of Laurens and the mother of three sons. Our youngest son, Otis, was born with CMTC. In addition to being a mother, I work as a language coach for non-native speakers and as a homework tutor. Together with, among others, Alexandra, I help organize […]

Dr. Federica De Majo – Focal point AVM Brain

My name is Federica De Majo. I am Italian, born in 1993, and I live in Utrecht, a lovely Dutch city, with my boyfriend Daniel, who is originally from Mexico. I work as a senior scientist and consultant for a biotech company. In March 2025, we lost our first son, Tommaso, to a very severe […]

Alexandra Haan – CMTC-OVM Activities Team (CAT)

My name is Alexandra Haan and I am a single mother of two. My eldest has a venous-lymphatic malformation around his left eye, temple, nose, forehead, and in the skull, and my youngest has a developmental language disorder. We live in Dordrecht and have travelled a lot (to New York, Berlin, Boston) due to my […]

College Zuyd (Netherlands) – Translations

Zuyd Vertalingen is a translation agency run by fourth-year students at the Translation Academy. This implies that the team varies. In this close-knit atmosphere, we are able to cooperate well and get the best out of each other.

Eden (United Kingdom) – Ambassador & Film producer

Eden is a young filmmaker who is drawn to telling stories about humanity. She made her first short film aged 13 and her passion for filmmaking has led her to win several awards. Eden attended her first CMTC-OVM Conference aged 2 and travelled back to The Netherlands when she was 15; to make a series […]

Dr. Marjon ten Hoor (Netherlands) – Genetic research

Marjon ten Hoor

I am a teacher at the University of Utrecht (Netherlands) at the Department of Pharmacy and is involved in courses which are molecularly oriented (such as cell biology, immunology, microbiology and biotechnology). In addition, I support students in their development of oral communication skills. My focus is genetics and biotechnology and I help the CMTC […]

Dr. Lilian Vermeer (Netherlands) – Editor

Lilian Vermeer

My name is Lilian Vermeer. I have already worked for many years as a scientific journalist. After obtaining a degree in chemistry and a PhD on a biochemical immunological topic I worked for a couple of years for a publisher. After that, I started working as an independent (scientific) journalist because I have always liked […]

Ans Oosterling (Netherlands) – Kids event

I would like to introduce myself! I’m Ans and I have many years of experience organising creative workshops. I’m thrilled to organise creative workshops for the children and families. As in previous years, it is for me, a pleasure to help the children (also parents, grandparents and other members of the family) to participate in […]

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