Blog Katie Allen June 2025
Taking a break this month from the “How do I explain…” series to share an incredibly poignant experience I had at my dermatologist’s office this month. I was waiting in the secondary waiting room and was surprised and honestly a little annoyed that the appointment seemed to be running late, this doctor is unbelievably punctual, […]
CMTC-OVM Activities Team (CAT)
CMTC-OVM Activities Team (CAT) We recently established the CMTC-OVM Activities Team.We are involved in so many events and activities that it has become necessary to form a dedicated team. The number of volunteers is growing, with people joining us from both inside and outside our organization. This allows us to divide the workload into smaller, […]
World Health Assembly Resolution on Skin Diseases
Addressing the Need For Global Public Health Priority of Skin Diseases Côte d’ Ivoire, together with Nigeria, Togo, Micronesia, China, Egypt and Colombia is leading an initiative to place skin diseases firmly on the global public health agenda and have proposed a World Health Assembly Resolution on “Skin diseases as a global public health priority ”. […]
Blog Katie Allen May 2025
One of the most common questions anyone ever asks is “How do you explain…”, which makes sense, anyone with a visible difference knows this is a frequent question. However, it can be complicated by the rarity of some of our vascular malformations. If someone is wearing an insulin pump someone may ask what it is, […]
Blog Arianna Faro June 2025
A couple of weeks ago, I awoke with tears parading down my face; I had just awoken from a dream that was undeniably bittersweet, one that left me feeling both nostalgic and simultaneously gratuitous toward the life I have now. As a child, it was almost as if I had had this deep kind of […]
ISSVA 2025 – Paris
The ISSVA (International Society for the Study of Vascular Anomalies) held another international congress from April 23–25, 2025, in Paris. A total of 410 participants attended in person and 162 online, representing 49 countries. ISSVA is the global organization in the field of vascular malformations. Photography and video recording of the sessions were not permitted, […]
Blog Katie Allen April 2025
Conference days! This will be a short and sweet blog this month as I have been having an incredibly exciting time at conferences for the past few weeks. I had the absolute privilege to go to the Globalskin Conference 2025. This was an incredibly diverse dermatology conference. I was quite nervous to attend this event […]
Global Skin Foundation 2025 – Prague
From April 24–27, 2025, GlobalSkin hosted the Champion 2025 Conference, at the Vienna House by Wyndham Diplomat in Prague, Czech Republic. The event was attended by over 200 attendees including 163 skin patient leaders from 59 countries, along with speakers, industry partners, and key stakeholders. Themed “Champion”, the conference aimed to inspire, connect, and celebrate […]
Blog Katie Allen March 2025
One of the most common questions anyone ever asks is “How do you explain…”, which makes sense, anyone with a visible difference knows this is a frequent question. However, it can be complicated by the rarity of some of our vascular malformations. If someone is wearing an insulin pump someone may ask what it is, […]
Vascular Anomalies Patient Day 2025 – Argentina
On Saturday, April 12, 2025, the Interdisciplinary Center for Vascular Anomalies at Sanatorio Mater Deiis in collaboration with our CMTC-OVM organization organized a meeting ‘Vascular Anomalies Patient Day’ for patients, their families and healthcare professionals in Buenos Aires, Argentina. This was arranged together with our Patient Advocate Josefina and several local doctors. Because Lex attended […]