Christmas and New Year wishes 2023
The CMTC-OVM Board of Directors wishes you a Merry Christmas and a Happy 2023!
New: Katie’s blog
Katie is one of our Patient Advocates who lives in Canada. She likes to share her personal experiences, such as through her personal story, but now also through her own ‘blog’. Are you also interested in sharing your knowledge and experience with others? Then please contact us.
Blog Katie Allen Dec. 2022
When asked to start a blog on my CMTC I will admit I was nervous. I have often shared my experience in person, but a blog is new, very new, so I hope you will be patient and allow me to muddle along through this shared experience. I started laser treatments when I was 12 […]
NORD 2022 – Washington DC
On October 17 and 18, 2022, the US National Organization for Rare Disorders (NORD®) hosted the Conference on Rare Diseases and Orphan Drugs. More than 830 enthusiastic attendees from around the world gathered to address and take action on the opportunities and challenges facing the rare disease community.Items on the agenda included accelerated approval, newborn […]
EADV 2022 – Milan
Van 7 tot en met 10 september 2022 werd in Milaan weer European Academy of Dermatology and Venereology (EADV) georganiseerd. Het aantal deelnemers was 14.000 uit meer dan 120 landen over de hele wereld en 600+ sprekers in 170 verschillende sessies. Stand Onze organisatie had samen met Naevus Global een stand tijdens deze conferentie. Wij […]
Eurordis 2021 – online
The annual conference of Eurordis (European Organization for Rare Diseases) this year was only an online member meeting and not a conference. As a result, there is no report.
Eurordis 2022 – online
The European Conference on Rare Diseases and Orphan Products is recognised globally as the largest, patient-led rare disease event in which collaborative dialogue, learning, and conversation take place, forming the groundwork to shape future rare disease policies. The 11th edition of the European Conference on Rare Diseases & Orphan Products (ECRD) was a virtual event […]
Skin in the class
Many people do not consider the important role of the skin in everyday life. An organ that is not perceived as such, especially if there is nothing wrong with it at first glance. It will be different if the skin is not completely standard due to, for example, a deviation in the pigment or if […]
