EADV 2018 – Paris
The European Academy of Dermatology and Venereology (EADV) held their annual congress in Paris from 12th to 16th September 2018. We were invited by the Global Skin Foundation in Canada to participate in this worldwide congress attended by a thousand medical specialists. Prof. Dr. Suzanne Pasmans and Prof. Dr. Peter Steijlen, two of our medical […]
Rare diseases day Netherlands 2020
World Rare Disease Day took place on 29th February 2020 and for the twelfth time, VSOP was involved in its organization. This year, VSOP organized the meeting ‘Rare – Stronger Together’ in Madurodam, The Hague. Over 100 participants were inspired by presentations from patient representatives and others. Topics such as the psychosocial consequences of a […]
Rare diseases conference Austria 2019
Silke and Alexander participated in the rare diseases conference in Austria (Salzburg) on behalf of our organisation on 8 and 9 November 2019.On Saturday, the joint meeting began with registration at 8 a.m. At 9 a.m. we had the first meeting with lecturers on periodic fever syndromes and familial diffuse stomach cancer.At 10 a.m. we […]
Rare diseases day Netherlands 2019
During the international Rare Disease Day, every year on the last day of February, awareness is raised for people with rare disorders. These events take place in many countries. This way, it is hoped that rare diseases will become more publicised. In the Netherlands, the VSOP (Association for Cooperating Parents and Patients Organization) organises the […]
Rare diseases day Netherlands 2018
During the International Rare Disease Day, attention is paid annually to people with rare diseases on the last day of February. Events take place in many countries. In this way, it is hoped to bring more rare diseases into publicity. In the Netherlands, the VSOP (Association of Cooperating Parents and Patients Organization) organizes the annual […]
Rare diseases day Netherlands 2017
Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives. 28 February 2017 marked the tenth international Rare Disease Day. On and around this day hundreds […]
Rare diseases day Netherlands 2016
Rare Disease Day takes place on the last day of February each year. This year 29 February was Rare Disease Day.The main objective of this special day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives. The day was launched in Europe in 2008 by […]
Rare diseases day Netherlands 2015
On Saturday, February 28, 2015, the worldwide rare disease day was organized, in the Netherlands. This time Burgers ‘ Zoo in Arnhem was chosen as the site. Special activities were organized for children, and the participants could visit the zoo after the event. The reception included special giraffe cookies. After the opening came a number […]
VBF 2019 – Athens
The American organisation “Vascular Birthmarks Foundation” held a conference in Athens (Greece) on 7 and 8 June 2019.Our secretary, Anja Fluijt, participated on behalf of our organisation. The opening of the Congress on Friday, June 7 is scheduled at 8.00 pm. That means getting out to of bed early. I am staying at the home […]
VBF 2018 – New York
On behalf of our organization, Lex van der Heijden attended the annual conference of the Vascular Birthmarks Foundation (VBF) in New York on Saturday, October 6, 2018. There were approximately 300 participants. We have been aware of this organization, founded by Dr. Linda Rozell-Shannon (she has a daughter with a vascular disease herself), for over […]
