Eurordis 2005 – Luxembourg

On 21 and 22 June 2005 a major international conference in the field of rare diseases was held in Luxembourg. The conference was organized by the European Organization for Rare Diseases (Eurordis) and various partners and supported by the European Commission, the Government of Luxembourg and the French organization against neuro-muscular diseases (AFM). On behalf […]
CORD 2019 – Toronto

The Canadian Organisation for Rare Diseases (CORD) organised a conference in Toronto from the 10th through the 12th of May, 2019. Lex participated in this conference on behalf of our organisation. Approximately 140 people were present from countries from all over the world. In addition, again meeting with the old acquaintances, new contacts were made, […]
NORD 2004 – Minneapolis

From 14 to 17 October, Lex van der Heijden attended a conference of the National Organization for Rare Disorders (NORD) conference in Minneapolis in the USA. The following is a report of this very intense, emotional and tiring journey.Approximately 180 participants – mainly from the USA – attended the conference. Of these, there were two from Europe and […]