Rare disease day 2023 – video Katie Allen
Katie is one of our Patient Advocates from Canada and shares a bit of her experience. We not only support people with CMTC but also with Other Vascular Malformations such as Klippel-Trenaunay Syndrome (KTS) and Diffuse Capillary Malformation with Overgrowth (DCMO).
Presentation Prof. Dr. Laurence Boon – Diagnostic and Management Pathway for Venous Malformations
Presentation by one of our medical advisors Prof. Dr. Laurence Boon about ‘Diagnostic and Management Pathway for Venous Malformations’ (English).
Marco Dings passed away
On December 30, 2022, Marco Dings passed away at the age of 59. Marco was one of our early members and built our first website, among other things. In addition, he has performed numerous other information and communication technology activities for our organization. We wish Sanne, Alex, other loved ones and friends a lot of […]
Christmas and New Year wishes 2023
The CMTC-OVM Board of Directors wishes you a Merry Christmas and a Happy 2023!
New: Katie’s blog
Katie is one of our Patient Advocates who lives in Canada. She likes to share her personal experiences, such as through her personal story, but now also through her own ‘blog’. Are you also interested in sharing your knowledge and experience with others? Then please contact us.
Skin in the class
Many people do not consider the important role of the skin in everyday life. An organ that is not perceived as such, especially if there is nothing wrong with it at first glance. It will be different if the skin is not completely standard due to, for example, a deviation in the pigment or if […]
25 years CMTC-OVM Anniversary booklet
We have developed a special Anniversary booklet for our 25th anniversary. One of the authors is Prof. dr. Jan Peter Balkenende (former Prime Minister of the Netherlands (2002-2010) is the leader of the āDutch Sustainable Growth Coalitionā, a partnership of eight multinationals committed to sustainable growth, professor of āGovernance, Institutions & Internationalisationā at Erasmus University […]
Our birthday video from Austria
Our Patient Advocates Silke & Alexander with their son Niklas from Austria made a very original video to celebrate our 25th anniversary!
New treasurer & board expansion
Jacob Schipper, our previous treasurer is now really retired and his role has been taken over by Alexandra Haan. In addition, Laurens Rorive joined our board as a communication advisor. They will officially join our board at our global membership conference on October 29 and 30. Are you also interested in joining our board? Please […]
Dr. Peter de Laat retired
Dr. Peter de Laat retired on the 1st of August 2022. Peter was one of our medical advisors, a pediatrician, and one of the members of the multidisciplinary WEVAR (Working group for Vascular Abnormalities Rotterdam) team at the Erasmus Medical Centre in Rotterdam (The Netherlands). He worked together with our medical advisor Prof. Dr. Suzanne […]
