Molly (USA)
Molly was able to share her perspective from her experience as a person with physical challenges and also what she’s learned from doing volunteer work with others. We have sent Molly special ‘kanjer’ (champion) stroopwafels as a token of our appreciation. ‘Kanjer’ in this context does not only mean that these are extra large stroopwafels, […]
Kenneth (Norway)
This is the story of Kenneth, told by his mother. Kenneth was born on February 18, 1994 in Harstad, Norway. He was born by caesarean section. He weighed 4150 grams, and was 53 cm long with a head circumference of 40,5 cm. We were sent to Tromsø University Hospital where he was in an incubator […]
Becca (USA)
When I entered the world on July 10, 2009 everyone thought things were going to get easier. I guess I proved everyone wrong! When I was born I had a very unusual coloring on my right leg that the doctors had never seen before. They first thought I had broken or dislocated my leg while […]
Katie (Canada)
My name is Katie and I was diagnosed with CMTC when I was 5 months old. I am now 28 years old (2021) and have lived with markings down the right side of my body and the left side of my face, neck, and skull all of my life. I have had a few complications […]
Sofie (Denmark)
Hi! My name is Sofie and I’m a 18 year old girl from Denmark. I was covered with red blemishes when I was born. My mother and father couldn’t see them and the doctors had no idea what they were. That really scared my parents. An old doctor told my parents that it was called […]
Niklas Rotter (Austria)
When Niklas was born in February 2016, he had large red/purple spots on his right foot, leg, buttocks and lower back. The dermatologist told us the next day that he thought he had seen something like this in a book and that he thought it could be CMTC. But he also immediately admitted that he […]
Marleen (Netherlands)
Hello. I am Marleen. I am 28 years old (2020) and live with my husband and son of 0 years old in Zaandam. I am a speech therapist in my own speech therapy practice and in a nursing home. I love my job and I really enjoy my work. When I introduce myself to someone, […]
The story of Sanne (Belgium)
My name is Sanne and on 1st July 2017, I became the proud mother of my eldest daughter. Soon after the birth, I noticed purple marks on her, but at the hospital, no-one said anything so we were not immediately concerned. I had also seen a bald spot and a lump above her ear, which […]
Farina Mitchell (Australia)
I am Farina Mitchell and I was born in January 1959 in Sydney Australia, the first child of Guy and Dorrie. My vascular malformation is down my left side, predominantly on my hand and arm but also across my chest, back, bottom, and splattered down my leg to my toes. I think it would be […]
Eden (United Kingdom)
My name is Eden, I am 16 years old (2020) and based in the United Kingdom and am a patient of CMTC. My form of CMTC consists of patterns all the way along my arms and hands, the back of my legs, and other areas all over my body. The patterns will change colour depending […]