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For people with CMTC and Other Vascular Malformations

CMTC-OVM is a worldwide non-profit community that aims to improve the quality of life of people suffering from rare vascular abnormalities (blood vessel abnormalities), such as CMTC and Klippel-Trenaunay, their families, and stimulate scientific research into these disorders.

Interviews

03-10-2025

EADV 2025 – Paris

01-10-2025

Take part in the EURORDIS Rare Disease Barometer 2025

01-10-2025

Blog Katie Allen September 2025

24-09-2025

Impression members’ conference 2024

UPCOMING EVENTS

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I am:

PROF. DR. JAN PETER BALKENENDE

Former Prime Minister, External Senior Advisor to EY, Professor Erasmus University, Ass. Partner Hague Corporate Affairs.

DR. YANN LE CAM

CEO Eurordis

personal stories

“As if she already understands that it is part of her.”

SANNE

“I have never seen myself as different from other children”

EDEN QUINE-TAYLOR

“Enjoy what she can do and try not to worry”

MARCIA BRANDS

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REGISTER AS MEMBER

Membership of our organization offers a lot! Think for example of full access to our website, our international Family Days and Conferences in the Netherlands! Contact with other patients, families and health care providers is crucial!

CONTRIBUTE WITH A DONATION

Do you want to make a concrete contribution to improving the quality of life for people with a rare disease?

SPONSOR OUR ACTIVITIES

Becoming a sponsor of our organization also increases the (global) visibility of your company and shows your social face. Becoming a sponsor is a concrete interpretation of Corporate Social Responsibility / Involvement. We have sponsors from different companies who make an important contribution in various ways.

BECOME VOLUNTEER

Voluntary work in our organization contributes to your personal development. We often offer challenging work in an international and dynamic environment. As a volunteer, you can get a good expense allowance. We have drawn up volunteer profiles for practically all roles.

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our community

Membership in our organization offers a lot! Think for example of full access to our website, our international Family Days and Conferences in the Netherlands! Contact with fellow sufferers is crucial! Membership in our organization can be reimbursed by your health insurer.