For patients and families with CMTC and Other Vascular (bloodvessel) Malformations

CMTC-OVM is a worldwide non-profit patient organization that aims to improve the quality of life of people suffering from vascular abnormalities (blood vessel abnormalities), such as CMTC (‘Van Lohuizen syndrome’), and stimulate scientific research into these disorders.

Upcoming events

October 2020
No event found!

12 years ago (2006) our son was born. Very quickly.

12 YEARS AGO OUR SON WAS BORN

Your support is powerful

Our worldwide non-profit organization, active since 1997, consists entirely of motivated volunteers. We can always use support in many areas. Options are for instance as sponsor (by means of eg. products, services and money) but also as volunteer, member and donor.

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REGISTER AS MEMBER

Membership of our organization offers a lot! Think for example of full access to our website, our international Family Days and Conferences in the Netherlands! Contact with other patients, families and health care providers is crucial!

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CONTRIBUTE WITH A DONATION

Do you want to make a concrete contribution to improving the quality of life for people with a rare disease?

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SPONSOR OUR ACTIVITIES

Becoming a sponsor of our organization also increases the (global) visibility of your company and shows your social face. Becoming a sponsor is a concrete interpretation of Corporate Social Responsibility / Involvement. We have sponsors from different companies who make an important contribution in various ways.

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BECOME VOLUNTEER

Voluntary work in our organization contributes to your personal development. We often offer challenging work in an international and dynamic environment. As a volunteer, you can get a good expense allowance. We have drawn up volunteer profiles for practically all roles.

Twitter

Will warm, humid weather help to slow the spread of #COVID19 this #summer? A new study shows we shouldn’t count much on that. More on my blog. #NIH https://bit.ly/2Bj2c1Q

New - our #RareBarometer survey infographic on #raredisease perspectives on data sharing and data protection is now available in 23 languages
Find the infographic in your language here: http://tiny.cc/2rjbpz

With over 2000 results across 66 countries.

Missed a session during the European Conference on Rare Diseases & Orphan Products online last week? You can access recordings of all sessions for 1 YEAR via the platform.
Didn't quite register in time? You'll be able to register to access all recordings (coming soon!) #ECRD2020

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