CMTC-OVM
For People with CMTC and Other Vascular Malformations (OVM), their families and healthcare professionals.
CMTC-OVM is a global non-profit community that aims to improve the quality of life of people suffering from rare vascular malformations (blood vessel abnormalities) such as CMTC and Klippel-Trenanay, their families and to stimulate scientific research into these malformations.
Our worldwide non-profit organization, active since 1997, consists entirely of motivated volunteers. We can always use support in many areas. Think of this as a sponsor (such as products, services and money) but also of volunteers, members and donors.
Latest news
Your Idea Can Make a Difference!
Suggestion box 💡
Do you have a brilliant idea to improve our organization, activities, or the website www.cmtc.nl? Now’s your chance! We’re looking for fresh, creative, and smart ideas that truly make an impact.
👉 Submit your idea to our online Idea Box – it’s quick, easy, and right on the website.
Whether it’s a new project, a useful website feature, a unique campaign, or something totally unexpected… we want to hear from you!
💥 If your idea is implemented, you’ll receive a cool reward as a thank-you!
Not only will you help drive innovation, but your contribution will be recognized and celebrated.
🚀 The Idea Box is waiting. Because change starts with bold and visionary people – just like you.
Together, we make a difference. One idea at a time.
Agenda
July
September
October
Interviews
04-05-2025
Interview with Magdaléna Kohutová from Slovakia. She has a vascular malformation.
04-05-2025
Interview with Dr. Paolo Gasparella from Austria. Paolo is surgeon (and medical advisor).
04-05-2025
Interview with Nellemieke van Dinter. She is the mother of Annekee who has Klippel-Trenaunay.
04-05-2025
Interview with Dr. Marije van Dalen. Marije is psychiatrist in the Erasmus MC in Rotterdam.
Our worldwide non-profit organization, active since 1997, consists entirely of motivated volunteers. We can always use support in many areas. Think of this as a sponsor (such as products, services and money) but also of volunteers, members and donors.
Our community
Membership of our organization offers a lot! For example, full access to our website, our international Family Days and Conferences in the Netherlands! Contact with fellow sufferers is crucial! Membership of our organization can be reimbursed by your health insurance.
