CMTC-OVM Member Conference USA 2013
Our 2013 annual conference was held on July 6, in St. Louis, Missouri, at the beautiful St. Louis Union Station – A Double Tree by Hilton Hotel.There were over 60 individuals in attendance from the USA, Canada, and the Netherlands. The general meeting was opened by our president, Becky Gallis, who shared the organization’s mission, […]
CMTC-OVM Member Conference USA 2012
On July 14, 2012, we again attended the annual membership meeting in the USA, which was held near Washington DC. For the first time, the meeting was organized primarily by the U.S. chapter of CMTC-OVM with (financial) support from the Netherlands. Approximately 60 people from the USA and Canada came, some a few days earlier to […]
CMTC-OVM Member Conference USA 2011
This year’s U. S. meeting was held on July 16th at the Tysons Corner Marriott hotel outside Washington, D.C.Doctor Maurice van Steensel was on hand, primarily to perform diagnoses, but also to answer questions. Similarly last year, Steve Groft was in attendance. Dr. Groft is currently serving as director of the Office of Rare Diseases (ORD) […]
CMTC-OVM Member Conference USA 2010
On 17 July 2010 we again held our meeting in Washington DC, primarily for members from the USA and Canada. The number of attendees this time included 33 adults and 29 children. A nice turnout increases considerably each year. Lex brought not only “stroopwafels” (sweet Dutch biscuits) and “drop” (liquorice), but also many orange Dutch football […]
CMTC-OVM Member Conference USA 2009
Saturday, July 18 was “D-Day” especially for the American and Canadian CMTC-OVM patients.Lex brought a large amount of candy (like waffles, chocolate and licorice strips) and calendars. This was well-received! A buffet was arranged for those who were still hungry. Then the time had come to ask Doctor Maurice various medical questions. The number of […]
CMTC-OVM Member Conference USA 2008
During the afternoon of 12 July Lex organized a CMTC meeting for American members in the hotel and conference center where the Genetic Alliance meeting was being held. 16 people from various states attended. One of our members had even flown in from California. Other members had in some cases spent many hours driving to […]
CMTC-OVM Member Conference USA 2005
First meeting CMTC USA, in Edgewater, Maryland.After a long journey, Lex arrived at the hotel and was picked up by two of our members. They are the grandparents of a girl with CMTC. They were warm and hospitable and provided some very nice snacks. Lex brought “stroopwafels” for all the members. This is a typical […]
CMTC-OVM Member Conference Canada 2017
On Saturday, May 6, 2017, the Canadian CMTC-OVM organization held its second member’s meeting.Eleven families visited this meeting in the town of Cobourg. As was the case at the meetings in the Netherlands and the USA, there was the possibility of making a medical diagnosis. Dr. Millan Patel performed these diagnoses. A separate room with […]
CMTC-OVM Member Conference Canada 2016
On Saturday, April 23, the first Canadian members meeting was held in Toronto by the Canadian CMTC-OVM organization.The Sandman Signature Hotel was selected as a host because of its location close to the airport. From the Netherlands, Prof. Dr. Arnold Oranje and Lex van der Heijden were present during this conference. One could also, just […]
CMTC-OVM Member Conference Netherlands 2019
During the first weekend of November 2019 we organised our annual worldwide member conference in the Netherlands. On Friday 1 November patients had access to elaborate medical research in the Erasmus MC in Rotterdam, a centre of expertise in the field of vascular malformations, with the WEVAR team. We organised a welcome drink for the […]
