Eurordis 2013 – Dubrovnic
From May 30 to June 1, 2013 Eurordis was a gathering spot for members. This meeting took place this year at Hotel Rixos, Dubrovnik, Croatia.The meeting this year had a lot of emphasis on national plans and strategies of the various European countries in the field of rare diseases and how they should be implemented. […]
Eurordis 2012 – Brussels
From Wednesday, May 23 to Friday, May 25, 2012, we attended the annual Eurordis conference. Eurordis is the European umbrella organization for all patient organizations and other players in the field of rare diseases. The conferences are useful for networking with other patient organizations as well as doctors and increasingly the pharmaceutical industry. During the […]
Eurordis 2011 – Amsterdam
From 12 to 14 May 2011 was Casa400 hotel in Amsterdam’s annual meeting organized Eurordis. This we have as an organization again attended. Thursday, May 12 Dutch patient organizations came together. Some of the organizations have a presentation. There was also the possibility to follow a workshop on online communities. During the day ever came […]
Eurordis 2010 – Krakow
We attended the Eurordis Conference in Krakow (Poland) from 13 to 15 May 2010. The President of Eurordis welcomed us and gave a presentation. This is the largest conference on rare diseases so far! The crisis in Europe has impacted organizations – there is in fact less being spent on public health. Grants are fewer […]
Eurordis 2008 – Copenhagen
Lex van der Heijden represented our organization at the annual Eurordis meeting. Each year this meeting is held in a different European country and this year it was the turn of Copenhagen, Denmark.The meeting was held on the 16th and 17th of May at a conference center, and was attended by approximately 140 people (in particular patients’ […]
Eurordis 2007 – Paris
We as an association are affiliated with several major international organizations such as Eurordis. This is a major international non-profit organization specifically representing the interests of Europeans with rare diseases. Eurordis has contacts at many levels, which opens doors for us that would otherwise remain closed. On 4 and 5 May 2007, Lex van der […]
Eurordis 2006 – Berlin
On 5 and 6 May Eurordis (the European non-profit organization for people with rare diseases in Europe) organized a conference in Berlin. Lex van der Heijden represented our association there. It appears that rare diseases are starting to receive more and more focus and attention in several countries. The wife of the German President Eva Köhler […]
Eurordis 2005 – Luxembourg
On 21 and 22 June 2005 a major international conference in the field of rare diseases was held in Luxembourg. The conference was organized by the European Organization for Rare Diseases (Eurordis) and various partners and supported by the European Commission, the Government of Luxembourg and the French organization against neuro-muscular diseases (AFM). On behalf […]
