CMTC-OVM Members Conference USA 2018
On the 21st of July, the American CMTC-OVM organized the annual conference in Chicago.The evening before, participants were treated to pizza and the children enjoyed the hotel’s swimming pool. The number of attendees amounted to about 30 (5 families in addition to the board). Three doctors gave presentations and two of them conducted medical diagnoses. […]
CMTC-OVM Member Conference USA 2017
The annual conference started on Friday, July 21 with pizzas. This time the conference was organised at the Airport Courtyard Marriott in Memphis, Tennessee. Rebecca Gallis started by giving an overview of the organisation. Their motto is: We’re all a little rare; but when we fall into mutual responsibility … We Call it a Family. […]
CMTC-OVM Member Conference USA 2016
On July 23, 2016 the CMTC-OVM US Organization held their annual conference. This year the conference was located in Columbus, Ohio at the Courtyard Marriott Downtown.Prior to the meeting on Saturday was the Friday family day. The purpose of the family day is to help people meet in an informal atmosphere so that it is easier to make […]
CMTC-OVM Member Conference USA 2015
On Saturday, July 11, 2015, the American CMTC-OVM organization held the annual conference. This year it was in Atlanta, Georgia. Because of the active involvement of our members in the USA and the large size of the United States, every year we hold this conference in a different state so that as many people as […]
CMTC-OVM Member Conference USA 2014
On July 5, 2014, the CMTC-OVM US organization organised its annual members’ conference for the second time this year in St. Louis Missouri. Becky Gallis, chairman of the CMTC-OVM US, opened with a brief welcome. Prof. Dr. Suzanne Pasmans, professor of child dermatology (also a medical adviser of the Dutch organisation) at the Erasmus Hospital […]
CMTC-OVM Member Conference USA 2013
Our 2013 annual conference was held on July 6, in St. Louis, Missouri, at the beautiful St. Louis Union Station – A Double Tree by Hilton Hotel.There were over 60 individuals in attendance from the USA, Canada, and the Netherlands. The general meeting was opened by our president, Becky Gallis, who shared the organization’s mission, […]
CMTC-OVM Member Conference USA 2012
On July 14, 2012, we again attended the annual membership meeting in the USA, which was held near Washington DC. For the first time, the meeting was organized primarily by the U.S. chapter of CMTC-OVM with (financial) support from the Netherlands. Approximately 60 people from the USA and Canada came, some a few days earlier to […]
CMTC-OVM Member Conference USA 2011
This year’s U. S. meeting was held on July 16th at the Tysons Corner Marriott hotel outside Washington, D.C.Doctor Maurice van Steensel was on hand, primarily to perform diagnoses, but also to answer questions. Similarly last year, Steve Groft was in attendance. Dr. Groft is currently serving as director of the Office of Rare Diseases (ORD) […]
CMTC-OVM Member Conference USA 2010
On 17 July 2010 we again held our meeting in Washington DC, primarily for members from the USA and Canada. The number of attendees this time included 33 adults and 29 children. A nice turnout increases considerably each year. Lex brought not only “stroopwafels” (sweet Dutch biscuits) and “drop” (liquorice), but also many orange Dutch football […]
CMTC-OVM Member Conference USA 2009
Saturday, July 18 was “D-Day” especially for the American and Canadian CMTC-OVM patients.Lex brought a large amount of candy (like waffles, chocolate and licorice strips) and calendars. This was well-received! A buffet was arranged for those who were still hungry. Then the time had come to ask Doctor Maurice various medical questions. The number of […]
