CMTC-OVM Member Conference USA 2009
Saturday, July 18 was “D-Day” especially for the American and Canadian CMTC-OVM patients.Lex brought a large amount of candy (like waffles, chocolate and licorice strips) and calendars. This was well-received! A buffet was arranged for those who were still hungry. Then the time had come to ask Doctor Maurice various medical questions. The number of […]
CMTC-OVM Member Conference USA 2008
During the afternoon of 12 July Lex organized a CMTC meeting for American members in the hotel and conference center where the Genetic Alliance meeting was being held. 16 people from various states attended. One of our members had even flown in from California. Other members had in some cases spent many hours driving to […]
CMTC-OVM Member Conference USA 2005
First meeting CMTC USA, in Edgewater, Maryland.After a long journey, Lex arrived at the hotel and was picked up by two of our members. They are the grandparents of a girl with CMTC. They were warm and hospitable and provided some very nice snacks. Lex brought “stroopwafels” for all the members. This is a typical […]
CMTC-OVM Member Conference Canada 2017
On Saturday, May 6, 2017, the Canadian CMTC-OVM organization held its second member’s meeting.Eleven families visited this meeting in the town of Cobourg. As was the case at the meetings in the Netherlands and the USA, there was the possibility of making a medical diagnosis. Dr. Millan Patel performed these diagnoses. A separate room with […]
CMTC-OVM Member Conference Canada 2016
On Saturday, April 23, the first Canadian members meeting was held in Toronto by the Canadian CMTC-OVM organization.The Sandman Signature Hotel was selected as a host because of its location close to the airport. From the Netherlands, Prof. Dr. Arnold Oranje and Lex van der Heijden were present during this conference. One could also, just […]
CMTC-OVM Member Conference Netherlands 2019
During the first weekend of November 2019 we organised our annual worldwide member conference in the Netherlands. On Friday 1 November patients had access to elaborate medical research in the Erasmus MC in Rotterdam, a centre of expertise in the field of vascular malformations, with the WEVAR team. We organised a welcome drink for the […]
CMTC-OVM Member Conference Netherlands 2018
On Saturday 3 November 2018 we held out global member conference in the Netherlands! About 80 people from Belgium, Germany, England, the Netherlands and Austria came to Leusden to participate in our annual member conference. The first guests arrived on Friday in the afternoon and evening. Around 20 o’clock our guests could get acquainted with […]
CMTC-OVM Member Conference Netherlands 2017
This year the Dutch CMTC-OVM organisation celebrated its 20th anniversary and had chosen a special venue (Landgoed ISVW, Leusden) for its annual member meeting. Many participants liked the location very much. “It felt like being at home instead of being a guest,” was one of the reactions of the visitors. In addition to various presentations […]
CMTC-OVM Member Conference Netherlands 2016
This year the CMTC member meeting on 12 November was combined with the LGD Alliance (Lymphangiomatosis & Gorham’s disease)meeting. Many people attended the meeting (about 130 people from 11 different countries). After the welcoming speech by Lex van der Heijden (CMTC-OVM) and Aaike van Oord (LGDA) the two organizations continued their own programme in separate […]
CMTC-OVM Member Conference Netherlands 2015
On Saturday, November 14, 2015, we held our annual global meeting in Netherlands! This year was a new record with 126 participants from 10 countries: Belgium, Bélize, Germany, England, France, Italy, Netherlands, Norway, Austria and Sweden! Unfortunately, the national presidents of the Canadian and American sister organizations were not present, to their great regret. We […]