NORD 2022 – Washington DC
On October 17 and 18, 2022, the US National Organization for Rare Disorders (NORD®) hosted the Conference on Rare Diseases and Orphan Drugs. More than 830 enthusiastic attendees from around the world gathered to address and take action on the opportunities and challenges facing the rare disease community.Items on the agenda included accelerated approval, newborn […]
NORD 2019 – Washington DC
On 20, 21, and 22 October the American Organization for Rare Disorders NORD organised another annual congress with around 900 participants. On Sunday afternoon a special session was organised for the Patient Leaders. We were placed into groups and a specific subject was discussed per table. Lex participated in the discussion on good governance and board […]
NORD 2017 – Washington DC
NORD, the American National Organization for Rare Disorders, held its annual conference on 16 and 17 October 2017 in Washington DC. Becky Gallis participated in this conference on behalf of CMTC-OVM US, and Lex van der Heijden did so on behalf of CMTC-OVM Nederland. We have been participating in this conference since 2004, and thanks […]
NORD 2016 – Washington DC
On 17 and 18 October 2016, the American organization for rare diseases NORD organised the annual conference in Washington DC. On behalf of CMTC-OVM US, Becky Gallis took part in this conference, and Lex van der Heijden attended on behalf of CMTC-OVM Netherlands organization. The number of participants was around 600. Below is a short […]
NORD 2015 – Washington DC
The American organization for rare diseases NORD held their annual conference on October 21-22, 2015, in Washington DC. The number of participants was more than 500 from all over the world. We as the CMTC-OVM organization have been for many years member of this organization. Representatives of the European organization for rare diseases Eurordis and […]
NORD 2013 – Washington DC
From October 6 to October 9, 2013, the U.S. organization for rare diseases, NORD, in collaboration with the American organization DIA, organized a conference in Washington DC. Becky Gallis from the CMTC-OVM US organization and Lex van der Heijden from the global CMTC-OVM organization both took part in this conference. During this period the U.S. […]
NORD 2012 – Washington DC
From 22 to 24 October, the National Organization for Rare Disorders in the USA (NORD) in collaboration with Drug Information Association (DIA) and conference with the theme “Shaping the future now.” The president of the American CMTC-OVM Becky Gallis and Lex van der Heijden have visited this conference. Lex had visited this conference in the […]
NORD 2006 – Washington DC
On behalf of our association Lex van der Heijden visited the annual National Organization for Rare Disorders (NORD) Conference in Washington DC in the USA. The conference started on September 28 evening and lasted until October 1 to about noon.By storm in Washington Lex had a night in New York at the airport and could […]
NORD 2018 – Washington DC
The American Organization for Rare Diseases NORD (www.rarediseases.org) organised their annual conference in Washington DC with around 800 participants from all over the world.We first visited this conference in 2004. On Sunday afternoon the conference started with a meeting of about 80 members. NORD announced that they would like to know and publish news and […]
NORD 2004 – Minneapolis
From 14 to 17 October, Lex van der Heijden attended a conference of the National Organization for Rare Disorders (NORD) conference in Minneapolis in the USA. The following is a report of this very intense, emotional and tiring journey.Approximately 180 participants – mainly from the USA – attended the conference. Of these, there were two from Europe and […]
