VBF 2018 – New York
On behalf of our organization, Lex van der Heijden attended the annual conference of the Vascular Birthmarks Foundation (VBF) in New York on Saturday, October 6, 2018. There were approximately 300 participants. We have been aware of this organization, founded by Dr. Linda Rozell-Shannon (she has a daughter with a vascular disease herself), for over […]
VBF 2006 – Boston
On behalf of our association, Lex van der Heijden the annual conference of the Vascular Birthmarks Foundation (VBF) on invitation visited Boston in the USA. This conference began on October 27 at the start of the evening and lasted until the afternoon of 28 October. Altogether approx. 200 people comprising mostly patients and parents of […]
NORD 2019 – Washington DC
On 20, 21, and 22 October the American Organization for Rare Disorders NORD organised another annual congress with around 900 participants. On Sunday afternoon a special session was organised for the Patient Leaders. We were placed into groups and a specific subject was discussed per table. Lex participated in the discussion on good governance and board […]
NORD 2017 – Washington DC
NORD, the American National Organization for Rare Disorders, held its annual conference on 16 and 17 October 2017 in Washington DC. Becky Gallis participated in this conference on behalf of CMTC-OVM US, and Lex van der Heijden did so on behalf of CMTC-OVM Nederland. We have been participating in this conference since 2004, and thanks […]
NORD 2016 – Washington DC
On 17 and 18 October 2016, the American organization for rare diseases NORD organised the annual conference in Washington DC. On behalf of CMTC-OVM US, Becky Gallis took part in this conference, and Lex van der Heijden attended on behalf of CMTC-OVM Netherlands organization. The number of participants was around 600. Below is a short […]
NORD 2015 – Washington DC
The American organization for rare diseases NORD held their annual conference on October 21-22, 2015, in Washington DC. The number of participants was more than 500 from all over the world. We as the CMTC-OVM organization have been for many years member of this organization. Representatives of the European organization for rare diseases Eurordis and […]
NORD 2013 – Washington DC
From October 6 to October 9, 2013, the U.S. organization for rare diseases, NORD, in collaboration with the American organization DIA, organized a conference in Washington DC. Becky Gallis from the CMTC-OVM US organization and Lex van der Heijden from the global CMTC-OVM organization both took part in this conference. During this period the U.S. […]
NORD 2012 – Washington DC
From 22 to 24 October, the National Organization for Rare Disorders in the USA (NORD) in collaboration with Drug Information Association (DIA) and conference with the theme “Shaping the future now.” The president of the American CMTC-OVM Becky Gallis and Lex van der Heijden have visited this conference. Lex had visited this conference in the […]
NORD 2006 – Washington DC
On behalf of our association Lex van der Heijden visited the annual National Organization for Rare Disorders (NORD) Conference in Washington DC in the USA. The conference started on September 28 evening and lasted until October 1 to about noon.By storm in Washington Lex had a night in New York at the airport and could […]
ICORD 2019 – Tel Aviv
On 11, 12 and 13 November 2019, the global ICORD conference was organised in Tel Aviv, Israel in close cooperation with many Israeli organizations such as the Ministry of Health. The first day was mainly devoted to all kinds of genetic topics. One of the speakers was the Dutch professor Prof. Dr. Han Brunner. Some […]
