Family Day 2018: Efteling
On Saturday 7 July 2018, we organsied our international family day in the Efteling theme park again. We let our members vote and the Efteling won again. The weather was beautiful and from 9am, we started welcoming more than 60 participants in the Efteling theatre, where delicious snacks were waiting for us. Several participants had travelled […]
Family day 2017: Efteling
On Saturday 24 June 2017 we held our annual CMTC-OVM family day in ‘the Efteling’ theme park. The Efteling turns out to be one of the most popular locations for the Family Day considering the number of participants. This year, approximately 80 people participated from 4 countries (Belgium, Germany, Netherlands and Poland)! Several families met […]
Family day 2016: Dolfinarium
On Saturday 25 June 2016, we held our annual CMTC-OVM family day in the Netherlands in the Dolfinarium. The total number of participants was 61. Several families travelled a long way (such as from Belgium and Zeeland). The Belgian participants were new members of our association and for them, it was the first time […]
NORD 2004 – Minneapolis
From 14 to 17 October, Lex van der Heijden attended a conference of the National Organization for Rare Disorders (NORD) conference in Minneapolis in the USA. The following is a report of this very intense, emotional and tiring journey.Approximately 180 participants – mainly from the USA – attended the conference. Of these, there were two from Europe and […]
Family day 2015: Efteling
CMTC-OVM Family Day Saturday, June 27, 2015. Report created by Natasja Hüel. Today we had a cosy and busy day in the Efteling theme park. We received a friendly greeting at the entrance after a ride of 1.5 hours. We received our tickets and the explanation. Upon entry we were greeted by Lex and Jacob, […]
Family day 2014: Amersfoort Zoo
On Saturday, June 28, we had our annual CMTC-OVM family day again. This time the participants could choose from three different destinations (Apenheul, Amersfoort Zoo and Duinrel). Dierenpark Amersfoort received the most votes.Several families again travelled a long way (such as Zeeland). The weather was excellent for a day at the zoo! Below is a […]
Family Day 2013: Efteling
Already the time again we have been looking forward to … the family day in the Efteling on June 22! Early in the morning we left Zealand behind us and drove towards Kaatsheuvel where we were welcomed at 9:00 am by Lex. We gathered in the theater. How good to see friends (now many) again […]
Family Day 2012: Burgers’ Zoo
The following is a report written by one of our members. On 9 June was the CMTC-OVM family day. This year the Burgers’ Zoo in Arnhem was chosen as the venue. The zoo is always fun. Our son Mike had been there a few days earlier. He couldn’t wait to get back there.That morning when […]
Family Day 2011: Efteling
Saturday, June 18th we had the third family day in the Efteling in the Netherlands. We chose the site partly because of the success of two years ago but also because of the age differential of our members. The weather was not quite as nice as two years ago, but with only two showers we […]
COVID-19 and Complicated Vascular Anomalies
Updated 20 March 2020. These recommendations may be subject to change and will be updated as needed. The World Health Organization (WHO) has now officially declared COVID-19 as a pandemic. In most cases, COVID-19 produces a mild respiratory infection, but in a minority of cases, the disease can be more severe and require hospitalization or […]